← Return to Atypical parkinsonism/MSA: Are anger and violence symptoms?

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My husband was diagnosed with MSA by Mayo in 2020, but he began displaying symptoms a number of years earlier. He died in 2025. I participated in online support groups that I felt provided reasonable information and helpful advice from participants and also participated in a moderated online monthly zoom group in addition to reading everything we found on the subject. I never heard of violence to the point of attacking a care giver, but it could have just never have shared in any of the groups. I did read about several caregivers experiencing incidents of verbal abuse and overly demanding behavior and sometimes that was related to what the MSA patient's behavior had been before the appearance of MSA symptoms. It would seem possible that this type of behavior could be a response to the diagnosis? I just don't know. My husband's first symptoms were "fainting". It was eventually discovered by a loop recorder implant that his heart was stopping. Then after a pacemaker implant did not stop all of the"fainitng" it was discovered that he also had significant BP drops. After the pacemaker he began showing symptoms of a neurogenic bladder, gait issues and everything eventually just snowballed over the last 5 years. Mission MSA and Defeat MSA have conferences (zoom options) that focus specifically on MSA. Hopefully, the diagnosis was made by someone with experience and knowledge of appropriate testing. There are several levels of diagnostic criteria with MRIs needed to have the higher level of certainity. At this time, the only definitive diagnosis is a brain autopsy after death. My prayers go out to anyone who has received this diagnosis. It is a long, complicated, frutrating journey but one that can be made with understading, grace and love.

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Replies to "My husband was diagnosed with MSA by Mayo in 2020, but he began displaying symptoms a..."

@lyndsm I’m very sorry for your loss.

In your experience did you hear of a patient being diagnosed with MSA-Type C when they had no issue with autonomic, bladder & sweating? My husband was diagnosed 12/4/25, scheduled for skin biopsy 2/11/26 & is still waiting to get an appointment with the MSA Clinic at UT Southwestern Medical Center. We’re anxious to get to the clinic as our list of questions is growing & we hope it’s the entry point for clinical trial qualification. The National Ataxia Foundation has a lot of information, although it’s very depressing to think of the journey we face. We registered for their national conference in April.

How long did your husband have symptoms before diagnosis? My husband started with gait issues 3 years ago, perhaps longer, we’re trying to determine the accurate starting point.

May God give you His comfort, strength, love & peace during your grieving process.