My Experience on Evenity for Treating Osteoporosis

Posted by arlene7 @arlene7, Jul 7, 2020

Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".

I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.

The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.

My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.

My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for linann1 @linann1

@millironk My first injections were in my arms. I found them excruciatingly painful. I switched to my abdomen since I used to have heparin and Lovenox shots there twice a day and it was definitely much more bearable. The abdominal shots are much much easier for me.

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@linann1
Thank you 🙏 for your input
Did you consider the self injection route ? Trying to decide !

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I am losing visceral fat because of fatty liver disease. What are anyone's thoughts about the bone/visceral fat connection?

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Thank you for 'liking' my post. Do you have any thoughts/experience with the connection?

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Profile picture for cbartonsandiego @cbartonsandiego

@linann1
Thank you 🙏 for your input
Did you consider the self injection route ? Trying to decide !

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@cbartonsandiego No one has suggested a self inject option for evenity but I have to tell you that I have a horrific phobia of needles so I had to have my daughter give me my lovenox twice a day I simply could not do it. Not the best option for me since I close my eyes, who knows where the shots would end up.
Sorry just saw your other comment talking about another injectable the only thing that was recommended to me or even brought up by my doctor is the evenity so I had not looked at other options.

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Arlene7, I see that you posted this is 2020. If you’re still tuned into this group, please let us know how the Evenity worked for you.

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Profile picture for linann1 @linann1

@cbartonsandiego No one has suggested a self inject option for evenity but I have to tell you that I have a horrific phobia of needles so I had to have my daughter give me my lovenox twice a day I simply could not do it. Not the best option for me since I close my eyes, who knows where the shots would end up.
Sorry just saw your other comment talking about another injectable the only thing that was recommended to me or even brought up by my doctor is the evenity so I had not looked at other options.

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@linann1 I did self injecting with Evenity. That is an option.

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Profile picture for willowmena @willowmena

@pyates That's weird. Sounds backwards, as Tymlo and Forteo are prescribed to build bone and are usually prescribed first followed by something to avoid reabsorption.

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@willowmena
I agree with pyates . Reclast or Prolia is given to avoid reabsorption.

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I have an appointment to see an endocrinologist after my first DEXA scan showed I have osteoporosis. After reading about the possible treatments the doctor will suggest, it looks like Evenity for 12 months followed by Prolia is a typical plan. Please let me know if you are in this situation. I am 65 years old, exercise 3 times per week, walk daily, and take calcium with vitamin D. I am very anxious about my diagnosis.

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Profile picture for debj @debj

Hello. I thought I would give my views on Evenity. I broke my knee a few years ago, it was a clean break and took about 6 weeks to heal. It was just bad luck that day, I fell in a “snow hole”, it was covered with snow and stepped right in it and turned and felt my knee break. I’m small boned and I was diagnosed with Osteoporosis several years ago in right hip, my hip doesn’t give me any problems, but because of my knee, my Dr recommendation was Evenity. The Rep just left when I arrived at the office for a checkup and I was the first one to try it. I trusted my Dr, no blood work was done to check my Calcium or anything. Well, started them in April. The first shots I could bearly move my arm for days, then my legs were always sore. I have had 4 shots and have been in terrible pain since. Going from a sitting position to standing, it so painful and knees causes me so pain. When I walk, it feels like I’m walking on golf balls. My feet feel cold all the time and I’m being poked with needles, my lower back hurts all away around to the groin area and my hips, thighs and calf’s feels like I ran 10 miles. I’m 58 and walk like I’m 80. I told my Dr, that I hurt so bad and I stopped the shots, his reply was let’s wait until October to get it out of your system. 2 weeks ago I was in outpatient because of the pain. I have switch Drs now and have to have test run next Wednesday. I see a chiropractor 3 times a week, my hips keep going out of place. Please, don’t get this shot, it’s not worth it. My Dr has never even prescribe anything else for me to help with Osteoporosis and everything I read says when all other medications have failed, I didn’t get that option. My body is in pain every single day and I’m totally pissed off that my Dr didn’t care and put me on these shots. Evenity is awful and it’s just not worth it. I pray It’ll get better and I will go with changing my diet and exercise and chiropractor care. There you have it. Thanks for reading!

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@debj Thank you for this information. I was just told this week that I need to go on Evenity. From the research I’ve done and your comments, I do not plan to begin the shots.
I’m very sorry you are going through this. Hopefully, your health will improve as the weeks pass.
M A

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Hi, I'm new to this group and would like some info. I was diagnosed with osteoporosis on my lumbar -3.0 and oeateopenia on hips -2.1 and -2.0. I fractured my wrist in 2023 and just has two metatarsal fractures (4th and 5th bones). No surgery just healed on its own both fractures. Wanted to see if you could share your t-scores and if anyone has had prior fractures before meds or while taking meds. I'm 62. Will
Be going
To a rheumatologist in March and I'm sure they will
Prescribe meds

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