← Return to My EP took me off eliquis. But I’m petrified. I’ll have a stroke now.

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I went to see two different doctors and I went to an ER. Nobody think that I need the Eliquis so I guess I have to make an appointment for a third one because I’m gonna have a stroke now.

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Replies to "I went to see two different doctors and I went to an ER. Nobody think that..."

@kmj126 I'm sorry that you're having this experience, including an inordinate fear of having a stroke, out of all proportion to your actual risk of having that stroke, at least from the medical history that you have shared on this forum. It's got to be a miserable way to live, with that fear hanging over your head. As you responded to me about the coffee, patients' histories and responses to...well, nearly anything are individual, and a post from one person with a low CHADS2 score reporting evidence of a stroke does NOT automatically mean this will also happen to you.
I know the fear of stroke is very real to you, and it should be addressed, hopefully to put the whole thing in a better perspective so you can go and enjoy your life. The problem with serial visits to doctors and ERs trying to find someone who will prescribe a blood thinner is that these providers don't know you, or anything about you and they're all looking at the established guidelines for blood thinner use, and your medical history falls outside those guidelines. As you know there are risks associated with the use of blood thinners, and the consideration of benefit versus risk for blood thinners is always a consideration for patients who are prescribed these drugs. It's just that with a low CHAD2 score, and your other history at the present, these providers would believe that prescribing a blood thinner to a patient who doesn't need one would make the risks of taking the drug higher than the benefits. I think going to different doctors or facilities to find someone who will prescribe a blood thinner will just result in your frustration and sure won't help with your anxiety on the matter as I doubt you would find a doctor who would prescribe a blood thinner under those circumstances.

But you're worried, scared that you will have a stroke, and as I see it you need reassurance, continuity of care, preferably from a provider who knows you, knows your history and is willing to see you on an ongoing basis, to monitor for ongoing episodes of A-fib. I'd think a cardiologist, or perhaps even a primary care doctor who can work with you over time to keep an eye on your heart rhythm to pick up any new episodes of A-fib or other arrhythmias. That's essentially what we did after my first episode of A-flutter, and it wasn't until 6 years later ( and a lot of other issues, but that's another matter) that they picked up the A-fib again and the cardiologist felt it was time for the Eliquis. If you're symptomatic ( ie, feeling the flutters, dizziness, shortness of breath, etc ) during an arrhythmic event you could contact the physician, go to the ER, or in some way get the arrhythmia documented- at that point if it turns out to be A-fib again they'd likely consider prescribing a blood thinner.
You could have periodic cardiac monitoring over time to see what your heart is doing, especially if you're symptomatic, and you could even monitor your own heart rhythm with a Smart Watch or a Kardia mobile device- this is especially helpful if you're feeling the symptoms of an arrhythmia- and you can even transmit the EKG data to your physician.
Just some suggestions and my best wishes to you that you can get this all straightened out so you can go on with your life without the worries that a stroke is waiting around the corner to get you- because a million to one it's not!