Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for badteeth @badteeth

I'm a 72 yr old living with chronic pain since 2004. I unknowingly had the pars defect. I was rear ended at a high rate of speed by a SUV while was at a stand still. I didn't know my back had broken cuz I had no pain for 6 weeks. The broken disc healed(?) on top of the lower disc with my sciatic nerve pinched in between them. This caused me to get scoliosis, sciatica and lumbar degeneration. It has spread upwards and now and I have thoracic degeneration. I'm have a bulged disc, a missing disc and a ruptured disc. Having neck pain now; therapist says it's a pinched nerve caused by my torn rotator cuff. I take Tramadol every 6 hrs as needed. It takes the edge off, but doesn't totally numb the pain. I had spinal injections when my insurance covered them. The injections didn't help. The 2 neurosurgeons I saw described 1) replacing my spine with a titanium rod top to bottom and (2) 3 separate surgeries with 6 weeks in a wheelchair between surgeries. Both claimed they could 100 percent "fix" me. Since I know 100 percent was unrealistic, so I ditched both of them cuz I can't trust a dishonest doc with a knife. I've known 2 people who were partially paralyzed by back surgery. Won't consider surgery until if/when I can't walk. I think death will relieve all pain. Taking 2 antidepressants and clonazapam. I feel like I have no choice but to welcome death. (NOT talking suicide) although until I adjusted to the pain I strongly considered it. I'm not crying like a baby cuz I know others have it worse than I. And with a bone dx of -4.9 in places what would hold the screws in place? So, hello, this is me. 🙃

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@badteeth, I hope your journey in this life presents you with better days. I would agree with you - not likely to get the whole back replaced by screws and bolts. I have one fusion at L5-S1 that has healed and is now bone grafted with the bolts and screws. I hope you can get some relief with the right amount of opioid medication for the short term. I am headed for another fusion TLIFT next week, now at L4-5. Tramadol is like a Tylenol for me, so I don't take it.

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Profile picture for toopie52 @toopie52

Hi, I’m Ken,been hurting for about 5 yrs….the mid back in the thoracic level 7/8/9/10, it started with just a discomfort that radiates into the ribs, mostly right side, but does crossover, then it started burning,aching,and muscle pain.it’s lasts all day, then it started radiating to the base of my skull into both ears, pressure, and tinnitus, 4 different sounds, it almost makes me faint, as time went on,more and more,symptoms came,pain in stomach,and also a nausea feeling, then panic attacks or fright and flight, it’s horrible, also a feeling of heart burn,but it’s not, and where it burns Flem is always constant, when the pain lasts so long I get palps, in the same area as the pain, it palps so long it hurts in my sternum, also at the base of the skull, in cracks, snaps, like breaking a pencil in half, now as of late, constant chills, come and go all the time, I’m now72, and the outlook seems to be hopeless, I’ve dr.after dr. With zero help, I get so so sleep, and I’m looking for some input,maybe answers somebody must be in the same boat,tons of tests,and nothing out of wack

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@toopie52 have you read The Way Out by Alan Gordon. I've have a horrible year and for the first time after adopting PRT I feel like I have some control and am starting to feel better. Yours may be all structural but from your description and your panic attacks/fright/flight, alot of your issues could be Neuroplastic related as it is a vicious cycle that keeps getting worse.

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Profile picture for badteeth @badteeth

I'm a 72 yr old living with chronic pain since 2004. I unknowingly had the pars defect. I was rear ended at a high rate of speed by a SUV while was at a stand still. I didn't know my back had broken cuz I had no pain for 6 weeks. The broken disc healed(?) on top of the lower disc with my sciatic nerve pinched in between them. This caused me to get scoliosis, sciatica and lumbar degeneration. It has spread upwards and now and I have thoracic degeneration. I'm have a bulged disc, a missing disc and a ruptured disc. Having neck pain now; therapist says it's a pinched nerve caused by my torn rotator cuff. I take Tramadol every 6 hrs as needed. It takes the edge off, but doesn't totally numb the pain. I had spinal injections when my insurance covered them. The injections didn't help. The 2 neurosurgeons I saw described 1) replacing my spine with a titanium rod top to bottom and (2) 3 separate surgeries with 6 weeks in a wheelchair between surgeries. Both claimed they could 100 percent "fix" me. Since I know 100 percent was unrealistic, so I ditched both of them cuz I can't trust a dishonest doc with a knife. I've known 2 people who were partially paralyzed by back surgery. Won't consider surgery until if/when I can't walk. I think death will relieve all pain. Taking 2 antidepressants and clonazapam. I feel like I have no choice but to welcome death. (NOT talking suicide) although until I adjusted to the pain I strongly considered it. I'm not crying like a baby cuz I know others have it worse than I. And with a bone dx of -4.9 in places what would hold the screws in place? So, hello, this is me. 🙃

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@badteeth I understand your feeling as you do. I am so sorry for all that pain. I pray you get some relief and comfort.

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