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Starting MGUS journey: It feels like the "in limbo" disease
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (5)Comment receiving replies
Hi, apparently it is your light chain ratio that is important. We could live with this and never become anything. Just don’t overthink it. Live your life like normal. It’s non symptomatic. Keep ur blood appointments and get your results. My protein is always increasing but still within normal limits. I was told if it increases again I will need to get a bone marrow test. I’m feeling good and I’m thinking of it as nothing being honest. It could be nothing and if I worry I have wasted precious time unnecessarily. How are you doing what has your journey been like??
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@orla hi Orla. Thanks for messaging back! I’m curious, do you know what your numbers are? My protein band was 2 g/L or .2 g/dl which the hematologist told me is quite low. I’m type igG lambda and my free lite chains were normal (.7). My igM was just above normal but labeled as high at 2.56 g/L but my igA and igG were within normal range. I had a clear bone scan and he just told me we’d retest in 6 months. I’m not sure if I should just keep living my normal life as if this didn’t happen and just do the labs in 6 months or if I should be making changes to my diet such as adopting a plant based diet and limiting my alcohol intake (I like to enjoy a few glasses of wine now and then). I feel worried to wait 6 months incase things get worse over that time period. Have you made any changes at all? How many times have you gone for labs and have your numbers stayed the same? Thank you, I appreciate any insight 🙂