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DiscussionCerebellar Stroke - experience/treatment/recovery
Stroke & Cerebrovascular Diseases | Last Active: May 5 11:27pm | Replies (515)Comment receiving replies
Replies to "I have balance issues 1 year after a stroke. Being in large crowds, weather changes, are..."
Ivon, I hope you are doing so much better! I do not have the balance issues so much like you, but I do have issues with crowds. Recently, I went to a great neuropsychologist in North Carolina and she has explained so much to me about the CEREBELLUM. I really like her ALOT. She is Dr. Karen Sullivan at Pinehurst Neurology in Pinehurst, North Carolina. She has several videos on facebook and Youtube about different strokes and the things they cause. She studied the cerebellum extensively and knows so much. She is far from me, but I travelled to see her because she answered so many questions I had about the things I was going through when no one else did. Here is the link to watch the cerebellar stroke episode she posted - https://youtu.be/tD7zImtrWNY - going to see her changed my view on a lot of things. From what she shared with us, the cerebellum is kind of like the brakes on our car. The brakes you can push down to slow the car down and not go so fast. Our "brakes" have been damaged so to speak being the cerebellum. The cerebellum is like a filter and causes everything we do to be "filtered". Our "filter" is damaged. Therefore, everything comes at us "FAST" with no brakes and no filter to slow it down. This sometimes causes us to see things as out of balance and out of control. For balance issues, I have read that there are vision therapy techniques that will help you in this area. You may want to check that out, vision therapy. With crowds, I still have issues, but I usually take someone with me. This helps me. I also can go to grocery shop at a less busier time. This helps. Or I can go to a smaller grocery store. We live in a small town so that helps. I hope all of this helps. God bless! Barbara
Hi, @ivon - I moved your post to this existing discussion where you have posted before on cerebellar stroke so that you can connect with others who have similar experiences such as @ian7811 @leslon @hammondm99 @brightwings @barbarajean100. Simply click VIEW & REPLY in your email notification to get to your post. Hoping they can let you know if they have also experienced balance issues a year or so after a stroke and getting nauseous under circumstances like large crowds and weather changes. They may also know about balancing exercises and how they have helped them, along with time.
Here is some Mayo Clinic information about rehabilitation from stroke that may be helpful https://www.mayoclinic.org/diseases-conditions/stroke/in-depth/stroke-rehabilitation/art-20045172
Have you felt the exercises have improved your balance from where it started after your stroke? Did the therapist who assigned you these exercises have any thoughts about whether continuing them over time will help?