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New study: Early treatment with interferon can delay myelofibrosis
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@birgitr
Staying active is great, as it keeps our platelet-heavy blood circulating. By "active" I don't mean marathons! Just walk a little farther, swim a little longer . . . I aim for 30-60 minutes of activity every day.
No food or supplement has been proven to help with ET.
The programming of our blood marrow has been disrupted. Nothing we eat can change that.
We do want to choose as healthy a diet as possible, of course. Eating well protects our hearts and our circulation.
An ET diagnosis is overwhelming. This is the best place to get answers!
You're among friend here. Wilkommen!
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3 Reactions@janemc Thank you so much for your warm welcome and your considerate words. Sometimes I am feeling like an imposter because I am definitely scared, on the other hand I am aware that other diagnoses are much more worse and frightening for sure. Insofar it is a real gift to be able to talk to people in a similar situation with profound knowledge. I guess not only the desease is rare at least in Germany the knowledge about ET and their different types of mutations is truly limited.
ET isn't the worst possible diagnosis -- but it's not a walk in the park, either.
It exhausts us, strains our bone marrow, puts us at risk for strokes, and it can cause blinding headaches.
ET must be taken seriously. And yes, it's extremely rare worldwide.
To make it worse, most people have never heard of ET. Sadly, this includes many medical professionals.
We are so lucky to have this forum, which brings us together from across the globe to pool our experiences and support one another.