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I have JAK2 ET and MPN: Anyone else have these symptoms?
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (111)Comment receiving replies
@loribmt I am deeply touched by reading your story although I only have a mundane knowledge about your specific blood cancer I am absolutely aware that you have to deal with a lot and you are doing it in an impressive and brave way. Not to complain and compare -moreover to invest in research and providing other patients with profound insights is truly admirable. Particularly your psychological support is outstanding and remarkable. Thank you for being a mentor. How are you doing today after those years with your desease , maybe you would like to share your daily life, your thoughts and your struggles ( sorry once more for my English, i started learning the language from scratch three years ago , so I am still far away from being able to write without mistakes)?
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Hi @birgitr. Oh gosh, thank for such a lovely comment. I can assure you, 7 years ago when I was in a battle for my life it never occurred to me that I’d be a mentor for anyone in the future! But, getting through it all, surviving, overcoming…well, it changed me. Throughout the past 7 years, I’ve met so many outstanding and simply amazing people from my medical teams to complete strangers that showed me such compassion, helping to save my life, assisting me at some of the lowest points in my life and offering me hope. So, to be able to offer some encouragement and hope to anyone going through a blood cancer journey or to mentor anyone having a stem cell transplant, it just feels like a privilege. ☺️
Actually, because you asked about my life, a couple of years ago Mayo published a little Spotlight article about me. My life hasn’t changed much since it was written. I still walk many miles daily, exercise, spend several hours in Connect and devote time to watercolor, making journals, sewing, etc.. I’m always busy.
Here’s a link to my little bio.
I’ll take an order of Hope with a side of Mayo, please! - Meet @loribmt
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/ill-take-an-order-of-hope-with-a-side-of-mayo-please/
So I have to ask, since you mentioned learning English…which I’m so impressed you’re taking on, because it’s so complicated…are you from Germany? One of my closest friends and penpal from Germany share’s your name, Birgit.