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Profile picture for Lori, Volunteer Mentor @loribmt

@birgitr, Crucial things besides transitional meds…exercise, both aerobic and weight lifting, walking outdoors when you can, avoid excess sugar/starches/processed foods, drink plenty of water (room temp is better) to help keep toxins flushed, eat healthy with lean proteins, Greek low fat non-sweetened yogurt, lots of veggies, fruit and whole grains.
Advice from my own hematologists, supplementation isn’t necessary. While some supplements such as ginger, turmeric, green tea, etc., can be helpful with being high in antioxidants or anti-inflammatory properties, they can also act as blood thinners, vasodilators or can lead to organ damage.
There isn’t anything you’ve done that had you developing ET. There was a random mutation of a gene that caused this to happen. So there is nothing you have to abruptly change in your life except to now take a medication which will help keep your platelet level within normal parameters. ☺️

Distraction works wonders to get you through some anxiety of a new diagnosis. What are your favorite activities during the day?

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Replies to "@birgitr, Crucial things besides transitional meds…exercise, both aerobic and weight lifting, walking outdoors when you can,..."

@loribmt I am trying to keep my mind busy, doing exercises in the gym , going to work ( I am teaching kids in maths) , love to meet friends…Thank you for elaborating on eating habits.Although this isn’t study based I try to focus on healthy eating habits as well. Green tea , nuts , olive oil , garlic , tons of veggies and wild berries are for example vital nutrients i prioritize.

@loribmt What is from your perspective the most common struggle of Et patients? Although the life expectancy is not so bad in comparison to other variants of bloodcancer the worries are impactful.