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New study: Early treatment with interferon can delay myelofibrosis
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (13)Comment receiving replies
Staying active is great, as it keeps our platelet-heavy blood circulating. By "active" I don't mean marathons! Just walk a little farther, swim a little longer . . . I aim for 30-60 minutes of activity every day.
No food or supplement has been proven to help with ET.
The programming of our blood marrow has been disrupted. Nothing we eat can change that.
We do want to choose as healthy a diet as possible, of course. Eating well protects our hearts and our circulation.
An ET diagnosis is overwhelming. This is the best place to get answers!
You're among friend here. Wilkommen!
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@janemc Thank you so much for your warm welcome and your considerate words. Sometimes I am feeling like an imposter because I am definitely scared, on the other hand I am aware that other diagnoses are much more worse and frightening for sure. Insofar it is a real gift to be able to talk to people in a similar situation with profound knowledge. I guess not only the desease is rare at least in Germany the knowledge about ET and their different types of mutations is truly limited.