New PMR diagnosis

10 mg is low for a starting dose of prednisone. 12.5 to 20 is more typical, and some people even start at 30. You might need a higher starting dose if your symptoms are not being resolved.

Thank you; much appreciated.

Also, I found that splitting my dose helped…2/3 am and 1/3 pm or 50/50.

I agree with Jeff. I started on 20mg and kicked it in about 4 hours. I went back immediately to my old self. At about 12 days I was able to taper to 10mg within a couple of days and had some slight pain but I could manage. I stayed at 10mg for the next 5 months. I dont think there is a one size fits all but it sounds like your starting dose is not enough. Due to the issues with steroids you should try to reduce to your lowest possible dose. If 20mg works then try 15mg or 12mg. You will find a comfortable spot.

Good to be involved and get educated at the onset. Know your lab results.
It is appropriate to start around 20 mg prednisone daily. In the event you are on steroids long term Suggest checking BP and weights weekly.
Know your cardiovascular risk profile is increased with systemic inflammation. Ask your rheum consultant about Dexascan baseline.
Get fasting glucose and A1c at intervals. Take your prednisone with food
and I took famotidine antacid combo and melatonin 5mg at bedtime.

Thank you so much; very appreciated.

New to PMR, new here. Yes, the mornings are absolutely brutal. Sadly worked out 6-7 hours a week, now zero. Took blood tests sed rate (96 when it should be 20-30) and c-reactive protein (20, when it should be 1) . Both off the scale. Since I have high blood pressure and cholesterol, I tried fasting for a week. Pain went from 7/8 to 4/5. Then stated eating again and after a week, pain is 9/10. Trying really hard to not have to take prednisone. Since fasting will lower inflammation, BP and cholesterol, hoping this works for PMR as well. Fingers crossed. Blood test in 2 weeks to see if it makes a difference.

@pmrnew Be careful if you're not going to take prednisone. I developed PMR about 3 years ago, and I went for a year before being diagnosed. I didn't know anything about it or GCA, and I blamed my symptoms on other things, such as aging and a sinus infection. After a few months of untreated PMR I also developed GCA. I ended up being hospitalized to treat temporary vision loss from the GCA. My vision is ok now, and I feel very good, but I've been under treatment for about a year and a half with prednisone and Actemra.

Anyone with PMR needs to be familiar with the symptoms of GCA, because GCA is dangerous. It can cause vision loss, strokes, and aneurysms. Up to 20 percent of people with PMR also develop GCA. For GCA symptoms I had night sweats, low grade fever, pain in my cheekbones, fatigue in my jaw muscles when chewing, and tenderness around my ears and on my scalp. A lot of people have a headache which they haven't had before. I also had temporary vision loss, which was an emergency.

@jeff97
you are totally correct. Yes, thankfully this only started about 6 weeks ago. And yes, reading up to familiarize myself Thank you

@pmrnew
Talk to Dr abt meds. History shows it’s not a quick reduction.
I, too, massive exerciser, active…..this is a step down in your activity.
Look into Aqua pt, pool walking and exercises, hot tub, functional movement. It’s not quick, I live with an anti inflammatory diet, a team of support as listed above.
Nire: if you have pain, your body gets no relief/rest.