Have you tried oxygen therapy at flow rates that support hyperventilation? It may sound scary and there are a lot of old wives tales that caution you not to breathe oxygen this fast, but it is very safe. I've 3000 hours flying Navy jet fighters and all of that flight time was spent breathing 100% oxygen at flow rates well above 30 liters/minute.
I would try this method of oxygen therapy prior to DBS surgery. In addition, most cluster headache sufferers (CH'ers) are vitamin D3 deficient. Have you had a recent 25-Hydroxyvitamin D lab test? It's also known as 25(OH)D and it's the serum level metabolite of vitamin D3. Most CH'ers presenting with active CH have 25(OH)D levels ? 50 ng/mL, (125 nmoll/L).
@batch My husband is using oxygen therapy at 15 litres per minute and it is the only thing that has helped. He will still go through cycles, but they have lessened in pain and time dramatically. It was prescribed by his neurologist.
My husband had cluster headaches seasonally typically spring & fall for 6-8 weeks from age 22 to 57. He & I were involved with the "Cluster Busters" group which was helpful. He used oxygen & meds. Unfortunately, he was in a cluster headache cycle & died of a sudden heart attack in 2011. My heart goes out to cluster headache victims & their families. Cluster Busters has annual meetings & does advocacy work in Washington DC & with pharmaceutical companies. 🙏
My husband had cluster headaches seasonally typically spring & fall for 6-8 weeks from age 22 to 57. He & I were involved with the "Cluster Busters" group which was helpful. He used oxygen & meds. Unfortunately, he was in a cluster headache cycle & died of a sudden heart attack in 2011. My heart goes out to cluster headache victims & their families. Cluster Busters has annual meetings & does advocacy work in Washington DC & with pharmaceutical companies. 🙏
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@batch My husband is using oxygen therapy at 15 litres per minute and it is the only thing that has helped. He will still go through cycles, but they have lessened in pain and time dramatically. It was prescribed by his neurologist.
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1 ReactionMy husband had cluster headaches seasonally typically spring & fall for 6-8 weeks from age 22 to 57. He & I were involved with the "Cluster Busters" group which was helpful. He used oxygen & meds. Unfortunately, he was in a cluster headache cycle & died of a sudden heart attack in 2011. My heart goes out to cluster headache victims & their families. Cluster Busters has annual meetings & does advocacy work in Washington DC & with pharmaceutical companies. 🙏
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1 Reaction@nle - I am so sorry for your loss. How terribly sad. That is great you are trying to help other patients and their families with cluster headaches.