@jmjlove- Good morning. We haven't talked yet but I'm right there with you on this one. I'm a mentor for Mayo Connect, mostly in lung diseases and I also support the anxiety and depression group. I'm a 22 year lung cancer survivor and 2 years ago I had a few small mini strokes that effected my right eye. I had a stent put in and everything is fine now. I just had my annual testing and things look open and smooth flowing. Two years ago I also had my 4th lung cancer and between the two I was traveling to MGH (Boston) almost once a month and was bouncing around like you. Last year I was also followed very closely because I also needed to have a collapsed pulmonary artery repaired that had been nicked in my second lobectomy ten years prior. Finally in February of this year I was given a six month reprieve between CT scans for my lungs but still this doesn't account for the specialists at home.
I agree that things need to calm down with so many specialists but on the other hand isn't it great that science has improved techniques and treatments so well? When my artery collapsed my lung surgeon sent me to a pulmonary radiologist and he came up with a personalized remedy to fix the artery. My surgeon is now teaching that to his students. I did wind up having a stent placed and my breathing hasn't been this easy in a long time.
I ask some of my doctors if I can have any of the treatments through my pcp but some of them are too technical. Maybe you can ask for this too?