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Profile picture for birgitr @birgitr

@emd64 Thank you so for sharing obviously the meds particularly HU are working properly. Have you ever been thinking about Interfereon? And how are you dealing with the desease psychologically?

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Replies to "@emd64 Thank you so for sharing obviously the meds particularly HU are working properly. Have you..."

@birgitr no to interferon as long as the HU is working I’m staying with it, I learned to get over the diagnosis very easily as my father had PV another MPN and first dealt with his issues, unfortunately he also had Bone Cancer and left us too early. Although I was assured I was not at risk 10 years later I developed my MPN, Drs say it’s not hereditary but is genetically related.