@sueinmn Thank you for your reply and sharing your experience. What you went through sounds difficult and exhausting and I wish you did not have to go through that.
I am considering antibiotics 3x per week prescribed by the ID dr and will review with the new pulmonologist but it is concerning and no, at this time, I do not fully trust my care team. Specifically because I do not have all the disciplines. Allergies and asthma are at the root of my condition and thankfully, my allergist is phenomenal. I do need a way to reduce the inflammation and prevent re-occurring infections and airway clearance may not be enough. I do like the thought of the monitoring approach but I need to discuss this with the new pulmonologist as I cannot assess the risk on my own. My diagnosis is very new (Nov 2025) so it will take some time to find the right team and develop a care plan. This site, all the feedback, has been tremendously helpful especially learning about airway clearance techniques and I have already seen an improvement. I appreciate you insights and experience.