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Profile picture for nohrt4me (Jean) @nohrt4me

@birgitr Important question, and no one really knows. The study above indicates that it may not work very well for patients with the more rare CALR mutation. The trade off between side effects and benefits of interferon may not be worth it for some patients. Research goes slowly because our disease is rare, and there are fewer of us to enter trials and studies.

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Replies to "@birgitr Important question, and no one really knows. The study above indicates that it may not..."

@nohrt4me Thanks you so much for your response 🙏. I was assuming that for example Ropeginterferon has less sideeffects. Do you know more about it and have you ever taken those meds by yourself ( sorry for my low level of English I am living in Germany 😅)

@nohrt4me What do you suggest how to handle the LDL cholesterol level. Is a number under 75 too ambitious or reasonable?