Hello @bille

Here is a recent discussion on Connect that you might find helpful before your appointment at John Hopkins. It is suggestions for how to get off to a good start with a new specialist. Some of the pointers are really helpful.
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/?pg=1#comment-240765