← Return to Cerebellar Stroke - experience/treatment/recovery

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@jmjlove

Thank you for your reply, Supra. Are your headaches constant, or only when head is against something? Mine are all day always, but become unbearable with pressure applied, as with pillow, wall. Don't mean to pin you down, just trying to understand my own head, lol. Is this headache typical for this type stroke?

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Replies to "Thank you for your reply, Supra. Are your headaches constant, or only when head is against..."

My headaches are constant but when i lean or lay on any surface hard ir soft it hurts more. My stroke occurred on my right cerebellum.

I have mentioned this before as a reply, but I tried Propranolol about a year after my stroke. My stroke was in March of 2011. That 1st year I had headaches everyday, as soon as I opened my eyes in am. Had sort of an emergency visit in 2012, to a clinic I had never been to before and the Doctor recommended trying that drug, worked for my blood pressure and the headaches. Was amazing how much it helped me about a day after I started to take it. Have been on it since 2012 and it helped alot, they are not totally gone, but much better than it was, although in the last month or so again I have been getting more headaches again and they are worse (like what I had the 1st year after the stroke). Sometimes taking Advil in addition to Propranolol helps, but not always.
I also have that feeling of not quite being there so to speak, just kinda in a daze, sort of, can function and do my work, but have to try to focus on everything so much more than before. For me it is really hard to honestly say I enjoy much of anything, I personally think it is from having to focus so much on what used to be, simple enjoyable tasks. Also it might help to have a job that is NOT stressful, if there is such a thing.
One more note, I have a fusion between C-5 and C-6, some of the headaches could be from that also, but again I don't think there is a fix. I personally think a tiny clot formed in that area and moved to the Cerebellum. I say that because we never did figure out a cause or where the clot came from.
It would be interesting to know how many of us, still do not have a diagnosis. Would it not be interesting if the doctors surveyed survivors with the same kind of stroke and asked many of the questions we are all talking about, to see what is most common among the most people and then at least try to come up with a workable fix or steer us in a direction that might help us help each other. Remember time and money are a big part of everything. Many times nothing gets done because of those 2 items.
All that being said, I do believe that some days just suck more than others, but we are the one effected and it is still up to us to keep trying and never give up!! Keep the faith!