I am not able to talk to anyone else except you guys too. No one understands...not even my husband. And frankly they either care too much or too little. I don't need to be babied, but I NEED HELP. I use my service dog for balance if in situations where I don't have someone I know to hang on to. No one understands (nor do I) how emotionally stressed I get. The other day I simply bathed, went to a dr. appt, and had therapy. I thought I was gonna faint. Hubby picked me up and I went home and slept for 2+ hours. WTH - I have never napped before this stroke and I feel the daily need for one now.
So, @hammondm99, I too find myself having huge issues in stores/venues that have a lot of fluorescent lighting. I think it's because if they are not covered they actually produce a strobe effect that my brain doesn't know how to process. I don't know... just a guess.
My therapist actually did an interesting test with me... told me to stand on a foam board - which of course was an epic fail... then she made me wrap up (swaddled) in a blanket and had me do the same thing - in utter amazement, I was able to stand.
Have you ever tried that?