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Cerebellar Stroke - experience/treatment/recovery
Stroke & Cerebrovascular Diseases | Last Active: May 5 11:27pm | Replies (515)Comment receiving replies
Hi, @supra865 - welcome to Mayo Clinic Connect. Your story about being at work and vomiting every time you tilted your head sounds just awful. I'm glad your patent foramen ovale (PFO), or hole in your heart, was discovered and closed. It sounds very tough that you feel as though you've never fully recovered from your massive cerebellar stroke and that the vestibular physical therapy didn't work for you. Getting very big dizzy spells and headaches everyday has got to be really hard.
Are you still working at this point, then, @supra865, or have you left? Does your doctor have some next steps for you for rehab from your stroke?
@kweber - glad your balance is improving. Sounds like you are working hard at it. How are you contending with the daily headaches?
@lunnjoy - welcome to Mayo Clinic Connect. Trust that you will find this a caring and helpful community. I note you have the hole in the heart in common with @supra865. You mentioned getting a LINQ monitor and waiting scared on the table. Is your monitor in place now? Wondering if you would share more about what kind of stroke you experienced and what your exact diagnosis may be?
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Hi Lisa, I went back to work 3 months after I got out of the hospital. But my symptoms never got better, I had a very demanding job on the railroad with odd hours,little to no sleep,working 12 hours and most of the time without lunch. I worked for 2 years after my stroke and it really took a toll on me. I worked for the railroad over 20 years and before my stroke I would be out at work 15-16 hours go to the hotel then back again for another 12 hours or so. After my stroke it was very hard to be there 8 hours,climbing the equipment,walking on rocks,and in every kind of weather. In june I stopped working there. A day after this past Christmas I suffered a mini stroke.And just this weekend had a migrane along with vomiting that kept me in bed for two days. I went for an MRI a week prior and it showed area of encephalomalacia in the inferomedial and posterior right cerebellar
hemisphere, with apparent small amount of hemosiderin my first stroke, punctate foci of T2-prolongation in the cerebral white matter. These are
nonspecific pattern, may be seen in the setting of migraines or other chronic
insults and developmental venous anomaly in the right parietal lobe.These last lines I copied and pasted from my MRI report. I see my neurologist next week.