← Return to Cerebellar Stroke - experience/treatment/recovery

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@elvieversion2

@strokesurvivordynamo Hello. Thank you for kicking off this topic. I haven't been able to find similar experience as my cerebellar stroke as mine when I searched the internet initially. Yours resonates with me. I am 49 year old female and suffered a cerebellar stroke on October 4 2018. I also didn't fit or have known risk factors; fairly healthy, nonsmoker, not diabetic, good cholesterol, exercises regularly and never had serious health issues. My blood pressure was high for me the morning I had the stroke. I had a sharp, the worst headache and experienced the 3Vs as you described (violent headache, vertigo, vomiting). My son called 911 and was taken and treated at the nearby hospital. CT scan did not show stroke, however, the MRI did. It was shocking for me and my family. I was lucky in that I didn't have physical deficits. I was in the hospital for 9 days mostly for observation, 2nd night, I had a re-bleed in the same area of my cerebellar (right). Again, very lucky in that 2nd stroke healed itself and no physical deficits. I stayed at the hospital to gain strength and stabilize my vitals. I suffered vertigo-like symptoms for quite sometime, dizziness, headache, unable to move neck/stiff neck and shoulders, and fatigue. I did brief PT at the hospital and continued at home. The doctors did the typical tests to determine root cause:
- Blood test, several including whether my blood type clots
- Heart: ultrasound including bubble test for PFO
- Heart: TEE for PFO
- Carotid ultrasound: arteries in neck
- MRA scan
One additional inquiry with a hematologist specialist reviewed my case and didn't have any further recommendation or test. So I am currently left with no root cause of my stroke 3 months ago.

I know I am very lucky to have survived and recovered remarkably. My question: Were you able to determine what caused your stroke?
And for everyone, are there any of you who have not been able to determine the root case of your stroke?
Thank you.

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Replies to "@strokesurvivordynamo Hello. Thank you for kicking off this topic. I haven't been able to find similar..."

Same here, I’m 57 in good health other than the stroke! I had mine on Aug 1, 2018. I was fortunate to not have any lasting physical deficits other than a small leak in the left side of my mouth. However, every since the stroke I have been suffering from ongoing migraines. The question I ask to other people on this forum does anyone else suffer from migraines post stroke. The doctors also have done many test and have not determine the cause of my stroke. My neurologist basically told me we will never know what caused it, my blood pressure does run a little high and I have a high stress job in IT and that could be a mitigating factor.

Your story could have been my exact story I just post it on here for the first time tonight..

It happened to me just about 2 and 1/2 weeks ago I did not have a 2nd Stroke...
I'm seeing my neurologist probably next week.
I was not left with a lot of residual issues just mild Paralysis on the right side which I exercise daily to fight against..

I'm really scared about my prognosis because everything that I read on Google which I know is not good to do is telling me that a lot of people died in the first year.
I had a small blood clot in the cerebellum.
I have suffered from severe anxiety since this happened and I am petrified that I will die at the young age of 50 and leave behind my children.
What is the mean survival rate for this type of stroke if yours was mild. I did not ask my doctor about this and now I'm sorry but I did not because I'm facing The Weeknd petrified.

Can anybody offer any insight? In the hospital I have the bubble test echocardiogram and an MRI plus I also had cats cans of the neck and carotid artery with contrast.
I did not have the transesophageal echocardiogram yet I haven't scheduled for Friday and I'm really nervous about having it because it sounds horrible and invasive