invasive lobular carcinoma and invasive lobular in situ

Ideas I did not know

Trying to decide my best course of action....

@anatomary thank you

I would highly recommend seeking treatment at a top ranked cancer center who treat comorbidities all the time if, in fact, you are not already a patient at such a center.
You are trying to decide your best course of action...what is your oncology hematologist advising you?

Hello @gailmarienewton,

I combined your new discussion on invasive lobular carcinoma with your existing discussion titled:

"invasive lobular carcinoma"
- https://connect.mayoclinic.org/discussion/invasive-lobular-carcinoma-2/

Here, members who had a chance to share their experiences with you before can see you new post inquiring about best courses of action and things to consider when talking with your care team.

@anatomary I just want to speak to the point raised above regarding implants. I found out after I had my implants put in that way you’re taking AI medication’s to suppress estrogen. You are in a greater risk for encapsulation of your implant. My original implants we could stop. The surgery was in May. In September fell a flu shot. My right breast blew up when it turned out I had encapsulation and also a Sonoma underneath the right implant. The surgeon removed it and replaced it with another one. Now I have both rest that are a little bit different. I probably will have to have a third surgery to fix the issue. I think if I have another cancellation issue going forward, I will just opt to also go flat. Not worth it. I hope you are able to make your decision with all of this help. I know it’s not an easy time right now, but you’ll get through it and things will be better when you look back. Sending hugs.

Thank you. I think that I will go flat… everything I read is not positive for other choices.

Good Morning,

I was diagnosed with ILC in January 2025. After testing, markings I started chemo for 12 weeks. Then a single mastectomy followed by a corrective surgery to remove dead skin and the expanders. I am choosing to go flat and just use breast forms. I then did 25 rounds of radiation. I am currently on Letrozole and verzensio. I did fairly well with chemo, not a lot of side effects except awful sleep. Surgery recovery was hard but okay. Radiation made me extremely tired but I just listen to my body. The medication has been the worst so far, emotional roller coaster, vomiting, confusion, hot flashes, jitters etc. It is quite the road but I am still here. My advise- prepare. I put everything I needed on a side table (drugs, water, snacks, phone, remote) for surgeries. My kids (adults) were such a resource of support (emotionally and physically). My neighbors did a meal train for me. I just put out a cooler on my front porch and they dropped of food. My partner joined me for most doctor appointments to take notes and be a second set of ears. I loaded up on streaming channels for the year. Not sure if necessary as with chemo brain you don't remember so can watch the same thing over and over (haha).

Just take it one step at a time. My care team is the best and always responsive. Eat protein and hydrate. Prayers that your journey goes smoothly!!

@gailmarienewton
The book comes today. I had full ultrasound of organs and MRI of breast today. Get results in 2 days.

@gailmarienewton I think having confidence in your oncologist & surgeon makes a huge difference! I traveled a ways to get treated at a great cancer center in Seattle, rather than my local medical center. The cancer center was less convenient but it was infinitely better for me. I followed all their advice. I was stage 1 & had lumpectomy, 5-day radiation & now take half-dose (10 mg) Tamoxifen. No regrets so far! Sending best wishes to you!