← Return to invasive lobular carcinoma and invasive lobular in situ

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Good Morning,

I was diagnosed with ILC in January 2025. After testing, markings I started chemo for 12 weeks. Then a single mastectomy followed by a corrective surgery to remove dead skin and the expanders. I am choosing to go flat and just use breast forms. I then did 25 rounds of radiation. I am currently on Letrozole and verzensio. I did fairly well with chemo, not a lot of side effects except awful sleep. Surgery recovery was hard but okay. Radiation made me extremely tired but I just listen to my body. The medication has been the worst so far, emotional roller coaster, vomiting, confusion, hot flashes, jitters etc. It is quite the road but I am still here. My advise- prepare. I put everything I needed on a side table (drugs, water, snacks, phone, remote) for surgeries. My kids (adults) were such a resource of support (emotionally and physically). My neighbors did a meal train for me. I just put out a cooler on my front porch and they dropped of food. My partner joined me for most doctor appointments to take notes and be a second set of ears. I loaded up on streaming channels for the year. Not sure if necessary as with chemo brain you don't remember so can watch the same thing over and over (haha).

Just take it one step at a time. My care team is the best and always responsive. Eat protein and hydrate. Prayers that your journey goes smoothly!!

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Replies to "Good Morning, I was diagnosed with ILC in January 2025. After testing, markings I started chemo..."

@ccc1965 This really does help....I am looking forward to a journey and really need to know what to expect. Thank you and wishes for your journey.