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Profile picture for darkflowa23 @darkflowa23

@rjjb oh boy! your not afraid of augmentation? That scares me the most about those and these drugs. Eventually it will happen to me but I will do it until then. For right now the tramadol works. I wonder if there are studies about suicide and RLS related deaths or because it is labeled a sleep disturbance it falls thru the cracks? Twice I can remember wanting to do suicide due to the sleep depravation. 3.5 days. About 1 yr ago and before that about 8 yrs ago. Hallucinating and hearing things. Not fun.

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Replies to "@rjjb oh boy! your not afraid of augmentation? That scares me the most about those and..."

@darkflowa23 Yes, there is research that tells us the suicide rate is higher for folks with RLS. Check out the medical literature through pubmed. Suicide risk is NO surprise to those of us have had it really, really "bad." Also, augmentation--caused by dopamine agonist drugs--is the biggest problem with RLS treatment right now. Physicians have had such a long time where these prescriptions have been the mainstay--most primary/internists haven't been enlightened about the problems with augmentation. Any RLS expert will tell RLS sufferers to avoid. ALSO, there is a RLS thread through "Mayo sleep" about RLS and Nidra. Check it out. This is a relatively new device (FDA approved and Medicare paid for) that you wear and it is very effective. The Noctrix Company (google it) has lots of information on its website--including how to get it (now available in most, but unfortunately not all, states) I've had mine since last April and have had zero symptoms in 7 of the last 8 days. The night I did have symptoms, the Nidra let me go make to sleep in a couple minutes. I still need medication--but when a posting starts out talking about suicide and ends with that kind of success--you all should be looking into this. For me: a miracle! The best to all of you!