← Return to Cerebellar Stroke - experience/treatment/recovery

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@hammondm99

I also work in the IT field and know what you mean! I had to gradually build up my work week over the month after my stroke, slept a lot to recover. I would get fuzzier as the week progressed but was fortunate to not to need meds, The more intense the week is, the fuzzier I get. I still, after 11 months, look forward to the weekend to shut my brain down for a couple of days!

On the bright side, I seem to have taken a corner in the last 2 - 3 weeks, I am noticeably more alert than in the past and my coordination and fine motor skills on my right side are much improved. I will guess my brain made some big strides with reorganizing itself. I have been playing the guitar for many years and the stroke impacted by ability to hold a pick, strum to a beat and find the strings when picking (and brushing my teeth, writing my name, using a keyboard and mouse, holding a pen, combing my hair....). Took me all of 2018 and a lot of work/rehab to get to the point where I feel more in control. I actually played guitar in front of a crowd last weekend for the first time in almost a year, I was anxious at first, but it felt so good once I started and I actually forget about the stroke!

You hit the nail on the head when you say "Unless you’ve been though this, people don’t understand", so true. I am one to internalize things and when I do discuss the challenges I am dealing with, people either don't get it or you can tell they feel uncomfortable when I talk about it. I very much appreciate having a place to go to ask others if they are experiencing similar challenges and find out what they may have done to get through them.

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Replies to "I also work in the IT field and know what you mean! I had to gradually..."

Your right about the weekends, I have to let the brain rest, I've been lucky and I'm able to go in work early when no one is in the office and work in the quite and leave early. That helps the headaches. But, as the week goes on, the headaches get worse. There are time I feel like people don't believe me that I'm in pain. I'm not so much such as if they don't believe me, as it much as they don't see any outward signs. I didn't have any outward disabilities from the stroke, no real bad coordination problems or loss of feeling. But, more in the really bad headaches and a noticeable change in mental recall. I was always the one in the office the was quick with the answer, or the "have you tried this" and now I find myself searching and struggling to get words out.

Even my husband does not understand completely... sometimes I think he is just mad at me. He says he is not, but I always took care of him and now I feel like he is looking at me as if I am making stuff up. He is not here all day and doesn't come to therapy with me, so he just doesn't get it. We are only 54, so it definitely was not something either one of us were prepared for.