← Return to Cerebellar Stroke - experience/treatment/recovery

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@wendyruhl

I had a stroke (or multiples) on Oct. 28th, 2018 - I am in rehab and at times I feel like I am going backwards. I did not have the typical FACE either and answered all the protocol questions...but very slow to respond. I felt like someone hit me on the side of the head with a bat (right side), and my vision was that of a kaleidoscope - I had to keep my eyes in the dark for a week and suffered extreme headaches. They said I had a stroke in the right cerebellum. I don't understand and am confused by the fact that I have no pain feelings in my right side. I go to therapy and my right side does not want to do what my mind is telling it to do. I have to do it with the left first, to try and figure out what to do.
I am frustrated, depressed, and just want to be normal again. I forget everything now...I write it down, but then I have no clue where I wrote it. I have started keeping one book for everythiing, but need to remember to use it. I used to be a highly intelligent person, and now I mess up words all the time. I hesitate and stammer most when I am on the phone with someone I don't really know and have to answer questions (like insurance, etc.)
Someone the other day (at a restaurant) said I was drunk. I can't drive. I now take zoloft to help with the depression. It does minimize my crying spells, but still. I can compensate and appear okay to people, but it takes everything out of me and I am exhausted.
Some of you are saying 10-12mths of this??? I am only 54 and that seems like forever to me.
Sorry, I feel like I am just venting.

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Replies to "I had a stroke (or multiples) on Oct. 28th, 2018 - I am in rehab and..."

Hang in there and try to not to lose sight of the gains you may see no matter how small! I went through the same and it is frustrating! If your stroke was anything like mine, believe it or not, you will get better! It just takes patience and work. Your speech will improve and you will find things become less difficult over time. I found I had to keep the number of things I focused on in rehab small, focus on just a few things, it was too overwhelming and depressing thinking about fixing the 1000 things I was struggling with as the result of my brain injury. Once I would get one task down, I would remove it from rehab list, chalk it up as another win, and add another task I was struggling with. I found it is all about repetition and you will get there! There were times when my progress stalled or seemed to go backward a little bit, but it would always pick up again in a few days. BTW, feel free to vent, not a bad thing, I know exactly what you are going through!