← Return to What if others say they're afraid you'll have a seizure?

Discussion
Comment receiving replies
Profile picture for Chris Gautier, Volunteer Mentor @santosha

@earlylonghauler
Good Morning!
Thank you so much for sharing this with us!
I'm so glad Briviact has been working well for you. How long have you been taking it?
Would you mind sharing what you wrote on that card?
Chris

Jump to this post


Replies to "@earlylonghauler Good Morning! Thank you so much for sharing this with us! I'm so glad Briviact..."

@santosha
Hi Chris, Below is the note I used to carry in my pocket. It's a full printed page; I would fold it into 1/4 and keep it in my pocket, along with ID and my Emergency Pill. I stopped carrying the note once I was seizure-free for 6 months. At that point I felt confident that the new medication was working well for me.

-------------------------------------
Dear Friend:

Please call 911 and let them know that < Your Name Here> has had an Epileptic seizure. My ID is on me. Let 911 know of any injuries I may have sustained. If I am seizing or convulsing, please move objects away that could cause injury. Important - DO NOT put ANYTHING in my mouth - its a choking hazard. Please stay with me until paramedics arrive.

Also please also call my Emergency Contact: < Contact Name> at < Contact Phone Number>.

Thank you for your help!
< Your Name> , < Address optional>

The seizure itself may last 3-5 minutes:
• During the seizure I may be unconscious and not be able to hear you or respond to you.
• If standing, I may lose consciousness suddenly and fall. Note any injuries I may have.
• If possible, ease me onto the ground
• If possible gently roll me to one side (keeps my airway clear so I don’t choke)
• Cushion my head with something soft like a rolled up towel or a folded jacket.
• If I am wearing glasses please remove them if possible.
• Loosen anything around my neck like a tie that might constrict breathing
• I may foam or bleed from the mouth – this is part of the seizure – do NOT attempt to stop it.

Once the seizure is over, it may take a while to recover. I may be confused until then.
• In the recovery phase I start to “wake up”, regain awareness, and begin to hear and understand you.
• If I have Oxygen with me, encourage me to use it. It helps me recover faster and think more clearly.
• I usually carry a pill case with my "Emergency Med" < med name here>. Once I am alert enough to swallow it on my own, remind me to take it. It helps prevent another seizure.
• Please make sure I have spoken with my Emergency Contact and I have a plan to get home.

What is a seizure ?
A seizure is a sudden burst of electrical activity in the brain that interferes with the body’s ability to function. Depending on severity, a seizure could be as mild as a temporary lapse in memory or awareness, or as serious as a tonic-clonic (grand mal) seizure with loss of consciousness and convulsions. Any seizure that lasts more than 5 minutes, or stops and restarts could be fatal (status epilepticus)