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DiscussionWhat if others say they're afraid you'll have a seizure?
Epilepsy & Seizures | Last Active: Feb 17 5:52pm | Replies (62)Comment receiving replies
Replies to "@earlylonghauler Good Morning! Thank you so much for sharing this with us! I'm so glad Briviact..."
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@santosha
Hi Chris, Below is the note I used to carry in my pocket. It's a full printed page; I would fold it into 1/4 and keep it in my pocket, along with ID and my Emergency Pill. I stopped carrying the note once I was seizure-free for 6 months. At that point I felt confident that the new medication was working well for me.
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Dear Friend:
Please call 911 and let them know that < Your Name Here> has had an Epileptic seizure. My ID is on me. Let 911 know of any injuries I may have sustained. If I am seizing or convulsing, please move objects away that could cause injury. Important - DO NOT put ANYTHING in my mouth - its a choking hazard. Please stay with me until paramedics arrive.
Also please also call my Emergency Contact: < Contact Name> at < Contact Phone Number>.
Thank you for your help!
< Your Name> , < Address optional>
The seizure itself may last 3-5 minutes:
• During the seizure I may be unconscious and not be able to hear you or respond to you.
• If standing, I may lose consciousness suddenly and fall. Note any injuries I may have.
• If possible, ease me onto the ground
• If possible gently roll me to one side (keeps my airway clear so I don’t choke)
• Cushion my head with something soft like a rolled up towel or a folded jacket.
• If I am wearing glasses please remove them if possible.
• Loosen anything around my neck like a tie that might constrict breathing
• I may foam or bleed from the mouth – this is part of the seizure – do NOT attempt to stop it.
Once the seizure is over, it may take a while to recover. I may be confused until then.
• In the recovery phase I start to “wake up”, regain awareness, and begin to hear and understand you.
• If I have Oxygen with me, encourage me to use it. It helps me recover faster and think more clearly.
• I usually carry a pill case with my "Emergency Med" < med name here>. Once I am alert enough to swallow it on my own, remind me to take it. It helps prevent another seizure.
• Please make sure I have spoken with my Emergency Contact and I have a plan to get home.
What is a seizure ?
A seizure is a sudden burst of electrical activity in the brain that interferes with the body’s ability to function. Depending on severity, a seizure could be as mild as a temporary lapse in memory or awareness, or as serious as a tonic-clonic (grand mal) seizure with loss of consciousness and convulsions. Any seizure that lasts more than 5 minutes, or stops and restarts could be fatal (status epilepticus)