← Return to Cerebellar Stroke - experience/treatment/recovery

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@rachelanne

Dear @hammond99,
I suffered a Hemorrhagic Stroke on 05/04/01, and I absolutely suffer from excessive noise, strange smells, and am confused every time I go shopping, even when it's the exact same Grocery Store! I also have difficulty being in crowds! I find it very overwhelming and overstimulating, even 17 years after my Stroke! I haven't been able to work since my Stroke; as I was diagnosed with Epilepsy, 2 years post-stroke! I still feel these things, but it also depends on the person!

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Replies to "Dear @hammond99, I suffered a Hemorrhagic Stroke on 05/04/01, and I absolutely suffer from excessive noise,..."

I feel fortunate that it does not bother me to that extent. The brain does some amazing things, most people don't realize it until something like this happens. Thanks for the reply!

Hi, My wife suffered a SAH stroke, in 2012. She was in intensive care for 5 days and at one point it was 50/50 if she would recover but anyone who knows my wife would bet on her. She is an inspirational person.

It was a very stressful time, she had a blocked vein which ruptured, and the veins that drain on her right side are now 100% blocked due to scar formation. Doctors believe it was the contraceptive pill that may have caused it.

I found her having a seizure when I went to go to bed, a sight I will never forget. It still haunts me today. When she came out of hospital she could barely walk a few meters and her tastes completely changed, she still won't drink coffee to this day, having been a big coffee drinker. It took her two years to eat tomatoes again.

When she came out of hospital she lost words and used sounds and shapes to identify words she had lost, so association played a big part in her recovery. 3 months later she started to finish her degree that she had just startred before the SAH, that was a tough year!

We managed to find a brilliant dooctor in the UK (private but did NHS, national health work ) who was progressive thinking.
She came off the anti seizure meds and after I wrote to a professor of neurology she got an appointment at Queens and came of anticoagulation in May 2013.

She is doing well but like you does not do crowds well and gets tired if too much is going on. Using tech is more of a challenge for her, she can do it but there is more of a learning curve. She is now on anti depressants which have really helped.

Intellectually she is still leagues above me. She always puts everybody before herself and has helped me with my stroke recovery in 2018!

I just wish i could give her more, that is my aim in life!