Connect
← Return to Cerebellar Stroke - experience/treatment/recovery
Discussion
Cerebellar Stroke - experience/treatment/recovery
Stroke & Cerebrovascular Diseases | Last Active: May 5 11:27pm | Replies (515)Comment receiving replies
Theresa, thank you for your response. 2 aneurysms 1 suddenly ruptured Aug. 12 at 1110am, I was facing my wall clock in my office in the hospital, yep that’s where I was when it happened. I’m a nursing director. The next thing I can recall is mid October with a searing headache and vomit due to the resulting hydrocephalus. Then rehab... Ugh!
Deficits... constant vertigo, nausea, photo/phonosensitive, double vision, insomnia due to spinning at night, tinnitus (loud), short term memory failure, difficulty with complex problems especially math. Depth perception disturbances, rising in a car is hard especially when the driver is fast and the roads are winding.
Meclazine is NOT doing much, vertigo seems directly related to fatigue but haven’t figured out anything else yet.
Most of all I’m mad and sad about what happened and what I have become.
Thanks for reading this, I know there are those who are much worse than I and still more who did not live to tell their story.
Replies to "Theresa, thank you for your response. 2 aneurysms 1 suddenly ruptured Aug. 12 at 1110am, I..."
Dear Tigsum, Thank you for your Post . I too was in the medical profession, for 4 decades !
I suffer from severe headaches, dizziness and Eye issues, most of all from severe loud Tinnitus!
When I saw my Neurologist five years back , he casually said “ well you had a Stroke in your Cerebellum “ ...
now I have two aneurysm in my head , they say we will keep an Eye on it . I’m scared out of my mind , I also no longer drive, dizziness does not allow it !
Today is a particularly bad day, I’m dizzy , I can’t walk straight, I guess they will do another MRI , though I’m told I should not request contrast as it leaves a residue of Metal in my brain ...
thank you for reading this, if anyone has a similar problem, please respond
Elizabeth
Connect
Your feelings are all understandable, @tigsmum
You did not mention any follow up therapy (PT, OT or neurocognitive therapy) but given that you are a nursing director, I'm sure you are not leaving any stone unturned in your recovery. You might also considering some counseling with a psychologist who has expertise in treating brain surgery patients.
We also have a discussion on Connect called, PICS, https://connect.mayoclinic.org/discussion/post-intensive-care-syndrome-pics-lets-talk/?pg=12#comment-65501. The Members here talk about recovering from post intensive care syndrome following major/emergency surgeries. A Mayo nurse facilitates this conversation. You might find it helpful as well.
Will you keep posting and let me know about your recovery progress?