Anyone else feel Isolated and not go out due to chronic pain?
Hello, I’m new here, I was recommended to join and interact with others who are in a similar situation as myself, I don’t go out much due to chronic pain and I feel isolated, anyone else feel the same?
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I think all of us experience isolation with chronic pain. I’ve struggled for years much to my wife’s chagrin, of going out to eat, whether a real restaurant or even a drive thru. I’ve learned if I occupy my mind with music and an eye mask or outside feeding and watering my birds. It grounds me in the morning, and calms my anxiety watching them eat and studying their habits.
I don’t know what enjoyable hobby you would like, but it works for me. Doesn’t help me get out, but makes my days more enjoyable than sitting inside dwelling on pain and isolation. My first back surgery was 2/2005, last major surgery was 3/2016. Since then I’ve had 2 SCS, and 2 morphine pumps. So I have years of trial and error, CBT, PT etc. Being an amateur birder has helped
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5 ReactionsOh yeah. I am only up 1 1/2 to 2 hours a day. Then I'm just worn out. I'm in bed 22-23 hours a day. It used to be the only way I felt the least amount of pain. But for the last year or two, that isn't working either. I have an upcoming appointment to look at a neurosimulator. I'm 71, and it's a real pain when I'm told I'm too old for this or that. If I'm willing to give it a shot, why can't they? Of course, medical insurance coverage seems to be a bigger issue by the day.
I can no longer 'go out', so I get what I want to see on my cable. When I get a chance to 'do' something, at least I watch something that really interests me.
My best to you.
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5 Reactions@kerryflow
I went to her Instagram site & was happy to click on some pics I really liked. It was yesterday so please [ if you think it's good ] let her know that was me. How are doing?
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3 ReactionsYes.
@anniesezu812 you are describing my life exactly. I’m home alone all day, every day. Just getting out of bed to get to the bathroom is excruciating most of the time. My spine and hips keep me from even lying in bed comfortably. Thank God I have a pain doctor in my home town who prescribed Oxycodone-acetaminophen 10-325 4x a day. It’s either take medication to be able to walk to the bathroom OR ‘unsubscribe to breathing.’ As much as I hate to say that, it’s the truth. People don’t realize it’s not just the pain we deal with. It’s the constant grief over the life we’ve lost due to the pain.
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3 Reactions@kaki068 I'm so sorry...yes I grieve over my own lost life also, Dr neglect....my pain Dr will only give 2x 10 or at best 7.25 3x daily. Sometimes I want to never wake up, from pain. I also cannot even lie comfortably in bed around the lumbar and hips.
This has helped me so much, do you know Joe Dispenza...if not Google. Its all science based. Im watching/ rewatching on Gaia to fully understand his methodology but I have learnt IF we want any kind of meaning to life WE HAVE TO CHANGE OUR STATE OF BEING/ PERSONALITY to create a NEW REALITY....its hard to feel a new happy life when you're struggling to survive but many worse than we have fully recovered. One lady woke from surgery completely paralyzed/ she didnt accept it and eventually became mobile due his teachings/ her dedication .
This may not be you're thing, I heard of him in
2019 but wasn't ready, didnt believe. Extensive research on my part, I now fully believe. I don't ever want to discourage anyone from seeking western medicine, the Mayo Clinic is the best in the World but I hope they forgive me suggesting alternative methods when we are beyond their help. Neuropathic / CRPS pain isnt called suicide disease for nothing....but im sure everyone here wants to be live and be healthy.
If anyone anyone is interested in Dr Joe but feels unable to read his books ....concentration is hard due pain, im very open to private messaging. Imho Dr Joe is going to eventually put hollistic teachings right along sude western medicine as an alternative to healing. Google Stories of Transformation ( ie healing). There are hundreds.
The Mind is Mind Blowing in how it can heal us.
I refuse to live like this for the rest of my life and im on a mission to heal. Im already seeing improvements in my mental health and am changing myself. It is proven I believe, there is NO part of the body that cannot heal, even the spinal cord.
Sorry this is long, anything I can do to save others from the misery I tolerate is so worth while. Big hugs❤️
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5 ReactionsJoanne-
I’m so sorry you are suffering with pain. It can be very isolating. There are local churches and affinity groups that have zoom gatherings. Might something like that be helpful? Please know that you are not alone. We are all glad that you are posting here. You might not have thought about this, but your participation here is a lifeline for others of us who benefit from your honest presence. Thank you for sharing. Blessings.
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5 ReactionsYes, I am trying so hard to not wallow in my pain but I can't move my body, it hurts too much. Keep trying.
I have bad days but I am not giving up
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5 Reactions@snuzy1966 What have you done to moderate your pain? Can you tell us a little about your issues, what therapies you have tried, and what helps?
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1 ReactionI have severe spinal stenosis, arthritis, degenerative disc disease, sciatica, ankylosis spondylitis, spinal structure, herniated discs, both cervical and lumbar, and scoliosis. I am 59 years old. I had 6 children and 6 epidurals and I was taking ultram for past 8 years.
My script never went up and I did well . I have been diagnosed with diabetes. My Dr wanted me to try Gabapentin. It hasn't helped. I stop going out completely, it's too painful. I haven't been able to work out or do physical therapy in the past 6 months. I can't accomplish too much in a day. I've had cortisone injections, RFA , and various nerve treatments through out the year. I use Lidocaine patches and Bio-freeze. Heating pad, hot Epson salt baths, Naproxen, Ibuprofen, Gabapentin , Yoga, and physical therapy.
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3 Reactions