← Return to Cerebellar Stroke - experience/treatment/recovery

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@pizza68

And the NHS no longer comission the closure of PFO's to prolong my life but I can get a boob job for £5000 of a gastro band done cos I'm over weight from eating too much, there just no logic ....

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Replies to "And the NHS no longer comission the closure of PFO's to prolong my life but I..."

Hi. Sorry you have this. My cerebellar stroke happened in 2013 at 43, after the chiropractor tore my vertebral artery. I am in the US, but I know all about how insurance companies are sometimes worse than a stroke. Doctors suck for the most part. I had a constant raging headache for about 4 months. I was prescribed narco and slept about 16 hours a day. Now I get headaches only f I do too much.
The brain fog lifted after about a year and I quit taking zofran. I was taking it for vomiting/nausea but it left me in a fog. I had debilitating nausea, vertigo and eye pain. It took about 12 doctors and 2+ years to get to the 2 roots of my issue. I don't know if this is what you have, but here is my info in case anything sounds familiar.

1. My eyes do not relay images to my brain correctly. It is because they are not perfectly alined and don't work perfectly together. And they move erratically instead of where I want them to go. The ONLY thing that helped is finding a neuro developmental optometrist. Also called a neuro optometrist. NOT opthamologist. My eye place is OCVT in Austin, Tx. Covd.org can help you find a Dr and has some good patient resources. They can't cure but helped to reduce nausea, vertigo and headaches.

2. My inner ear on one side is damaged. So it gets weird signals from my eyes AND it doesn't work right anyway. I went to "balance" therapy, physical therapy and nothing helped. Look up Vestibular Disorders Association. Good resource. Finally, I found an Ear Nose & Throat dr who is an Otologist. He did some hearing tests, and then the BEST part. He did a test called a posturograph. You are in a harness (for safety) then they move the floor and walls around to see if you can keep balance. I was hanging from cieling on the harness at the end. Depending on how you react to specific movements, he can tell where why and how you are messed up. My guys name is Dr. James Kemper in Austin tx if you want to see his specifics for comparison.

Because of 1&2 above, I am still a little clumsy, appear drunk sometimes and really can'T do any simple chores without lots of rest breaks.

If easier you can contact me directly by private message.

Hi just read your post, I heard that the NHS may be changing this due to results of a later PFO study. Get in touch with your doctor and ask to be referred back to consultant.