1. < Autoimmune Diseases
Profile picture for jonesc

Hydroxychloroquine side effects

Posted by jonesc @jonesc, Jan 19, 2025

Hi! My name is Candy and I’m looking for some pros and cons of taking hydroxychloroquine. My rheumatologist gave me a paper explaining a ton of very scary side effects and honestly, I’m afraid to start it. Does anyone have any experience starting out treatment with this drug and do the benefits outweigh the side effects.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for tisme
tisme | @tisme | 14 hours ago
In reply to @mah7925 "@tisme be careful with Meloxicam. It’s a NSAID and can damage kindeys. Up to 3000 mg..." + (show)
Profile picture for mah7925 @mah7925

@tisme be careful with Meloxicam. It’s a NSAID and can damage kindeys. Up to 3000 mg Tylenol may work for you.
There always a trade off unfortunately

Jump to this post

@mah7925 my family doctor doesn't want me using it due to the risk of stomach ulcers. , if the illness doesn't get you the treatment will.

REPLY
Profile picture for victoria7
victoria7 | @victoria7 | 8 hours ago

Been taking it for 34 yrs.. 400 mg for Sjogrens and eventually needed additional meds for RA… occasionally. I try to keep off any cortisone due to bone density issues.
I must get field vision test each 6mo. Yet lately I question toxicity. I plan to call Sjogrens Disease Center for support tomorrow. Reston, VA
This Sjogens is basis for 4.0
AAA … according to Mayo.

REPLY
Profile picture for victoria7
victoria7 | @victoria7 | 8 hours ago
In reply to @kforrest "this drug seems to me to be attached politically. it's hard to get what you need...." + (show)
Profile picture for kforrest @kforrest

this drug seems to me to be attached politically. it's hard to get what you need. I would like to use it. how many mgs are you taking for 20 years?

Jump to this post

@kforrest so agree Candy. It’s been 34 yrs and greatly helps flares. Need field vision test b-annually. Political only during covid. Geez. Seem to be past that now. Methotrexate added for RA flares. No issue. Good point.

REPLY
View MoreView Less
Please sign in or register to post a reply.