← Return to Cerebellar Stroke - experience/treatment/recovery

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@jamienolson

Hello @livetheday. Welcome to Mayo Clinic Connect! What a scary thing to experience. Thank you for sharing it with us.

Do you find yourself constantly worried that you are having another Cerebellar stroke?

Are you still having the headaches? or has the propranolol helping with that?

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Replies to "Hello @livetheday. Welcome to Mayo Clinic Connect! What a scary thing to experience. Thank you for..."

Yes. still have some headaches, but Propranolol does help a fair amount. I wonder if most of us are not just frustrated, like with any other brain injury, maybe things can never be normal again? I think I have learned to except that, but does not mean I like it! I think I could personally deal with pain and etc, but what bothers me more is lack of enjoyment in anything I try to do for fun or my own personal pleasure. It is just like I am numb to the world going on around me.
No I do not really worry about another stroke. It bothers me that the Dr's were not able to tell me what caused the stroke and the being told each year that goes by, that I just have to live with it. Sorry, there is nothing we can do! I feel bad for the others posting on here that were effected much more by their strokes than me. I wish I could help others in some way, but I think our system might need to change first. Doctors just simply, do not have enough hours in the day to listen closely enough to what their patients are trying to tell them.
I feel like if I bring in a list (so I don't forget to ask about the main questions or concerns at a Dr visit), they look at us like, OK another one of these people bringing a long list of stupid questions! It is kind of disappointing for many of us, if that happens! I am beginning to think that we all have to figure a lot of these things out for ourselves, so we can help others in some way.
Throwing pills at things, is most likely is not a cure, it is just a temporary fix or bandage.
Sorry if I now seem like a winier, but I am a fixer type person that likes to fix and put stuff back together like it was when it was new and it doesn't seem like that happens much anymore!
I wish the best to everyone else posting on here, kept the faith and keep working at it! Maybe together we can figure out a better way to improve things for ourselves!