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CLL Treatment side effects are wearing me down: Anything I can do?
Blood Cancers & Disorders | Last Active: Feb 16 8:34am | Replies (44)Comment receiving replies
@califirniagal my husband started Brukinsa( his WBC was 231 at the hospital) 1 tablet twice a day and was also prescribed allopurinol once a day. CLL was in his brain also which is very, very rare according to oncologist.
What side effects do you have besides bruising?
Replies to "@califirniagal my husband started Brukinsa( his WBC was 231 at the hospital) 1 tablet twice a..."
@sveta25 I’m 77 and was diagnosed with CLL 2/3/4? years ago. No symptoms and was in a wait and see period. Then a hemoglobin count of 6!. Two units of blood and four infusions of Ribitoux(sp?) followed up by monthly blood tests. 4/5 good blood tests so now blood tests every three months. I along with my doctor are happy. But my doctor says once one has CLL ONE WILL always have CLL. I’m kinda in remission but as my doctor says it can come back with a vengeance. I hope I don’t need further drugs or whatever but it is what it is and I will cross that bridge when needed. I really feel for your condition, my advice is to keep a positive attitude and deal with your CLL as best that you can.
Take Care
Butch Ukura
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@sveta25
Oh so sorry I have never heard of CLL on the brain, only blood & organs. The newer pills are only 2 per day rather than 4. I have to go to 1-1/2 pills now as the new ones are stronger. I have always taken them all at once.
I get bad bruises easily. I have no fatigue or any other issues except dry skin, nails & hair.