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Anyone have experience with CAR-T therapy for multiple myeloma?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 4 hours ago | Replies (12)Comment receiving replies
Hi @kaydee26. In 2019 Car T therapy hadn’t been approved for MM yet. So the stem cell transplant you had then was the current treatment option at the time. Can you clarify for me please. Did you have an actual bone marrow transplant using donor cells whereby you have an entirely new immune system? Or are you referring to an ASCT (autologous stem cell transplant) using your own stem cells? There’s a significant difference between the two procedures.
It’s wonderful you’ve had such a positive experience to the Car-T therapy, so thank you for sharing with the group. How often do you have follow-up appointments? Are you on any maintenance meds?
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@loribmt asct. They didn’t tell me there was a big difference! My light chains were over 40,000 at diagnosis. My bone marrow was 70 percent cancer. I went on aggressive treatment for a year.
Since the Car T, in March of 24, I’ve only had Bloodwork follow ups. I’m only on a blood thinner because of previous clots in the lungs, and an antiviral that they want me to stay on for some reason. When I started on it, the reason was the chemo treatments could cause mouth sores.
Anyway, I am on nothing for the blood cancer! I am now dealing with the lung disease only. But I am still having my blood checked regularly.