← Return to Anyone have experience with CAR-T therapy for multiple myeloma?

Discussion
claydavis avatar

Anyone have experience with CAR-T therapy for multiple myeloma?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 4 hours ago | Replies (12)
Comment receiving replies
Profile picture for kaydee26 @kaydee26

Re:claydavis
Hi. I realize now that I didn’t disclose that I had a BMT in 2019 for the myeloma. After getting COVID twice, it relapsed and I was back on chemo. THEN in 2024 I had the Car T Cell transplant. The cancer is still in remission, but now I have lung disease. Some say that the Car T contributed to that, but I know I had some scarring in there previously, so I’m not sure.

Jump to this post

Replies to "Re:claydavis Hi. I realize now that I didn’t disclose that I had a BMT in 2019..."
Lori, Volunteer Mentor | @loribmt | 9 hours ago

Hi @kaydee26. In 2019 Car T therapy hadn’t been approved for MM yet. So the stem cell transplant you had then was the current treatment option at the time. Can you clarify for me please. Did you have an actual bone marrow transplant using donor cells whereby you have an entirely new immune system? Or are you referring to an ASCT (autologous stem cell transplant) using your own stem cells? There’s a significant difference between the two procedures.

It’s wonderful you’ve had such a positive experience to the Car-T therapy, so thank you for sharing with the group. How often do you have follow-up appointments? Are you on any maintenance meds?

VIEW AND REPLY