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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@earlylonghauler
That's great! Can you tell us more about how helpful that was early in your epilepsy journey?
I noticed you mentioned you no longer carry it—I'm curious what changed?
Chris

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Replies to "@earlylonghauler That's great! Can you tell us more about how helpful that was early in your..."

Hi @santosha,
I was an adult when this started for me, and in the beginning having a note was important for me and others. It was a quick cheat sheet. When I was with family or friends I let them know I had the note and Emergency med in my pocket. Over time, everyone knew, and I felt less of a need to carry the note. Also I tended to have sleep seizures so less need for a note in my pocket. Briviact working well is also a big factor in not carrying a note. If I were to travel alone I would probably wear a bracelet and possibly carry a note. I still have it ready to print and take it with me if needed.