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DiscussionHas Anyone taking Camzyos Experienced Higher Blood Pressure Readings?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 21 4:48pm | Replies (25)Comment receiving replies
Replies to "Hi This is my first time on the site. My doctor is pushing for me to..."
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Hi @suzyqm518 ,
I join @boatsforlife in welcoming you to Mayo Clinic Connect. I'm glad you found this online community.
I absolutely could not have said it better than what @boatsforlife has already posted. His wise counsel is one I would listen to...read the stories of other Camzyos folks to get a sense of what to expect.
Although, no two people are the same, each one of us will have a different response to medications. You know you better than anyone!
I've got a question for you: Is your cardiologist well educated in Hypertrophic Cardiomyopathy?
You just had a pacemaker put in for a low heart rate, and you take two additional meds, a calcium channel blocker and a beta blocker. Either of these alone, and certainly together, can cause shortness of breath. But so can HCM. No wonder you are concerned.
You also mention these symptoms came on rather fast...just a few months.
So, I've got another question for you: When do you see your cardiologist again? Shortness of breath is a symptom of something. You want to be sure it is not due to the medications, along with advancing HCM. How long have you known you had HCM?
I will add to your reading list:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
Shortness of breath is one of many symptoms of HCM, but it can also be the side effect of certain meds.
I would bring this to your doctors attention...but in the meantime, learn as much as you can about what is living in your heart. You want to be able to advocate for yourself. Many patients with HCM or the dreaded HOCM, go undiagnosed, or misdiagnosed for years because HCM is a sneaky disease, masquerading as many other heart conditions.
When do you see your doctor next? Do you have a list of questions for them?