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Anyone have glioblastoma, IDH Wild-type, WHO Grade 4?

Posted by gregzacek @gregzacek, Apr 7, 2025

Wife was just diagnosed with glioblastoma, IDH Wild-type, WHO Grade 4. She just had surgery 5 days ago to remove the tumor. I am now looking for treatment options worldwide. Any help is greatly appreciated.

Also looking to start a non-profit orgnization to help others.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

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petesfam | @petesfam | Jan 17 9:11am
In reply to @jeanneoc "@nikkijomoore67 yes 6 weeks radiation with chemo then too, almost finished chemo course but neutrophils went..." + (show)
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@nikkijomoore67
yes 6 weeks radiation with chemo then too, almost finished chemo course but neutrophils went too low so dr said to stop it.

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@jeanneoc My neutrophils were too low also. Chemo stopped for 2 weeks till it went up again. Im back to chemo again Monday. 5 days/month.

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nikkijomoore67 | @nikkijomoore67 | Jan 18 2:52pm
In reply to @petesfam "@jeanneoc My neutrophils were too low also. Chemo stopped for 2 weeks till it went up..." + (show)
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@jeanneoc My neutrophils were too low also. Chemo stopped for 2 weeks till it went up again. Im back to chemo again Monday. 5 days/month.

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@petesfam wishing you renewed health and success!

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annagayle | @annagayle | Jan 19 12:37pm

I pray for you and your wife as u guys go through this difficult time..as far as I understand and have been reading about this disease and most of it I have learned about right here in this support group. Seems as if a lot of these people are educated on this and a lot of the treatment options. So I encourage u to dig deep into some of these comments and u might just run across the info that u need. At least I hope that u do. And unfortunately and idk if the doctors told u or not, but it doesn't look as if there is a cure for this. There are only limited treatment options and those treatment options are not going to cure this but, they may lesson the pain or whatever effects that someone may have from this disease...
My advice is to educate yourself on this disease as much as possible..Getting educated about it is where u will find your answers..
My 34 yr old son was diagnosed with same thing 4 yrs ago and he is now on his end of life care with hospice. It has been an extremely difficult battle for all of and I just pray about it all that I can. The power of prayer is a great thing...I suggest that u pray every chance that you get..
And u mentioned setting up a nonprofit to help others and I am curious as to what that would entail?? I am so new to all of this and I am trying my best to educate myself on it as much as possible. So if u would be so kind, could u please explain what the nonprofit thing will entail for someone?? And thank u in advance..
I am sending up huge prayers for u and your wife and all that are in involved in this journey that u are dealing with..I pray that u find the answers that u need and that your wife will get whatever treatment that she needs and it will be successful for her...🙏❤️🙏❤️🙏❤️🙏

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annagayle | @annagayle | Jan 19 2:06pm

I pray that u find the answers u are looking for. For your wife.
My question is u mentioned a non profit to help others, and I was wanting to know what exactly a non profit entails for others that are in need...I am very new to all of this and my son has a Stage 4 Glioblastoma Brain Tumor... So any info that u can tell me about this would be greatly appreciated... prayers s for u and your family🙏❤️🙏❤️🙏

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