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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (470)

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@nypara66
Thanks, So, its a part of PV itself and not the HU medication?
I wonder why doesn't my doctor tell me that when I inquired about my toes being numb?

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Replies to "@nypara66 Thanks, So, its a part of PV itself and not the HU medication? I wonder..."

@lindakay55 Honestly they don’t mention much. You can have neuropathy anywhere from PV. I went to an allergist for tingling in my face and she said she believes its from my PV?! It’s so rare and I don’t think they really know too much unless they’ve had multiple patients complain.