← Return to What if others say they're afraid you'll have a seizure?

Discussion
Comment receiving replies
Profile picture for earlylonghauler @earlylonghauler

Good question. When I was first diagnosed I carried a piece of paper in my pocket with instructions on what to do / not do. Essentially, if I have a seizure, let it run its course, move things away that I might hit or hurt myself with. Also (very important) do NOT put anything in my mouth (old myths die hard). After about 5 minutes, once I’m back and alert enough, make sure I take the “emergency pill” which is always in my pocket, to prevent another seizure. If I’ve hurt myself call 911. I no longer carry the note, but if I am spending time with someone and have not explained this yet, I give them the quick rundown. Most family and friends appreciate the info - and they do need to know what to do and what NOT to do. People still think they need to put something in your mouth to keep you from biting or swallowing your tongue. It’s impossible to swallow one’s tongue, and anything put in the mouth becomes a choking hazard. Wishing you well!

Jump to this post


Replies to "Good question. When I was first diagnosed I carried a piece of paper in my pocket..."

@earlylonghauler
That's great! Can you tell us more about how helpful that was early in your epilepsy journey?
I noticed you mentioned you no longer carry it—I'm curious what changed?
Chris