I am new to this group. My sister passed away with Light Chain Deposition Disease. Light Chain Multiple Myeloma is the 3rd most common Myeloma. It attacks your large organs and most usually the kidneys, also causing bone pain.
My sister had one kidney transplant at Mayo and 10 years later was scheduled for her second kidney transplant. She succumbed to complications of the disease 2 weeks prior to the second surgery.
I had promised her I would be tested, which after her death, I was diagnosed with MGUS. This was 11 years ago. I have been under the care of an oncologist/ hematologist for over 10 years. Depending on my blood work, I repeat them every 6 mos or a year, I have either a whole body bone scan or MRI, too. I have had 2 PET scans and bone biopsies.
My numbers will elevate then stay level for months. He follows the Kappa and Lambda light chain levels and their ratios closely, also.
I know different laboratories have their own charting for normals to abnormals but I was reading thru theses comments where patients are talking about their test results seeing if anyone posts their actual test results in numbers.
It was just something I would like to compare, mostly because I am having low back pain and so fatigued last few months. I have an appointment first week in March.
Thank you. May you days be happy and healthy.