Hashimotos Disease?

Posted by lluth412 @lluth412, May 23, 2025

Hi all,

I am normally in the lung health group as I have CEP, a rare lung disease caused by eosinophils. I also have adult onset asthma and sinusitis. I saw a functional medicine Dr last month to see if there are other ways to be healthier and manage my disease. The blood work she did showed my Thyroid Peroxidase TPO at 396 so very high. My TSH is normal and my T3 Free is borderline normal (2.3) as is Free T4 (1.01). I’ve been on prednisone for over a year but in a low dose currently. The functional Dr is very expensive since it’s not covered by insurance. Do I need to send these results to my GP for a referral to an endocrinologist? As background I had Graves’ disease in my 40’s but managed it through diet and meds and I’ve been in remission for almost 15 years without meds.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Mine was only at 70 but I demanded to have one whether they wanted to order or not. If not I would be contacting my insurance company

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Hashimoto's is also associated with anemia and various vitamin deficiencies from GI malabsorption. Iron deficiency anemia is common, Vit B12 and other B vitamins low levels are also common, contributing to fatigue, dizziness, and brain fog.
Recognizing the signs of Hashimoto's can empower individuals to seek necessary support.
Dizziness, shortness of breath, or palpitations
Pale skin or lips
Numbness or tingling in hands and feet
These often overlap with low thyroid symptoms, which is why so many women are dismissed or misdiagnosed.

Here is a link to an article about Hashimoto's and Iron and vitamin deficiencies:
https://www.joelradley.com/starving-for-b-vitamins-the-gut-thyroid-anemia-crash-in-hashimotos/.

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Reading these responses and wondered if you have Hashimotos but your thyroid is removed, are there still possible ongoing symptoms/issues like gut absorption, brain fog, etc.?

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Profile picture for fairn @fairn

Reading these responses and wondered if you have Hashimotos but your thyroid is removed, are there still possible ongoing symptoms/issues like gut absorption, brain fog, etc.?

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@fairn

If thyroid is removed, then hormone replacement therapy is needed. Synthroid is commonly prescribed. Otherwise, there will be symptoms of hypothyroidism, like gut malabsorption, fatigue, brain fog, etc.

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Profile picture for Alta Net @altabiznet

@fairn

If thyroid is removed, then hormone replacement therapy is needed. Synthroid is commonly prescribed. Otherwise, there will be symptoms of hypothyroidism, like gut malabsorption, fatigue, brain fog, etc.

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@altabiznet Yes, I should have included that info with my question. Once thyroid replacement is done, are there other impacts from having Hashimoto's? Since it's an autoimmune disease, does it still affect the body in any way? My family has a history of autoimmune diseases (possible RA, Sjogren's, Sarcoidosis, HLA-B27+, etc.) and my daughter is experiencing symptoms although her thyroid has been removed and she's on replacement hormones.

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Profile picture for fairn @fairn

@altabiznet Yes, I should have included that info with my question. Once thyroid replacement is done, are there other impacts from having Hashimoto's? Since it's an autoimmune disease, does it still affect the body in any way? My family has a history of autoimmune diseases (possible RA, Sjogren's, Sarcoidosis, HLA-B27+, etc.) and my daughter is experiencing symptoms although her thyroid has been removed and she's on replacement hormones.

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@fairn
Hashimoto's thyroiditis is limited to thyroid gland. If the symptoms remain post thyroid removal and on hormone replacement therapy, this can be a sign of another autoimmune disease in the body. Common associations are celiac disease, diabetes, RA, adrenal disorders, vitiligo, other.
I was diagnosed with Hashimoto's 15 years ago and was OK for 12 years. But 3.5 years ago, I was diagnosed with Systemic Sclerosis or scleroderma that started with Raynaud's vasculitis (purple fingers) and fatigue, then skin thickening over hands. Later on, it progressed to stiff and swollen joints, GI reflux and allergy to many foods. I also was on medications that contributed to GI distress. Need to be careful with medications. Some autoimmune diseases do not respond well to current medications, but new symptoms may develop or get worse. From personal experience, it may be years before another autoimmune condition becomes evident. Supportive care, like anti-inflammatory medications, anti-inflammatory diet, lifestyle modifications may be best treatment.
Autoimmune and inflammatory conditions are diagnosed by Rheumatology. Celiac disease - Gastroenterology. I think good Rheumatologist can do extensive blood tests panel to see what other possible conditions may be causing symptoms.
But let your daughter see a specialist to rule out other causes of fatigue and seek possible treatments.
Please see a link to
https://www.eurekahealth.com/resources/hashimotos-and-other-autoimmune-diseases-connection-en
https://www.mayoclinic.org/diseases-conditions/hashimotos-disease/symptoms-causes/syc-20351855

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Profile picture for fairn @fairn

Reading these responses and wondered if you have Hashimotos but your thyroid is removed, are there still possible ongoing symptoms/issues like gut absorption, brain fog, etc.?

Jump to this post

@fairn I’ve often wondered the same thing! I even asked my doctor;. He said as long as my thyroid was even partially functioning it would be crazy to take it out. When I tried to explain that I was thinking since it was working but not in any consistent manner I thought it made sense to take it out.

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Profile picture for margaret69 @margaret69

@fairn I’ve often wondered the same thing! I even asked my doctor;. He said as long as my thyroid was even partially functioning it would be crazy to take it out. When I tried to explain that I was thinking since it was working but not in any consistent manner I thought it made sense to take it out.

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@margaret69
I also have a partially working thyroid, and one doctor recommended taking it out to prevent thyroid cancer (rare event), but another doctor did not recommend doing it for as long as it works. It is followed by ultrasound with biopsies every 2-3 of years for stability. I guess, it depends on the condition of your thyroid gland - if no other risks, like goiter, or cancer, but only low function, then it is not recommended to take it out. May need a supplement with Synthroid, synthetic hormone replacement to compensate for low function.

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Profile picture for Alta Net @altabiznet

@margaret69
I also have a partially working thyroid, and one doctor recommended taking it out to prevent thyroid cancer (rare event), but another doctor did not recommend doing it for as long as it works. It is followed by ultrasound with biopsies every 2-3 of years for stability. I guess, it depends on the condition of your thyroid gland - if no other risks, like goiter, or cancer, but only low function, then it is not recommended to take it out. May need a supplement with Synthroid, synthetic hormone replacement to compensate for low function.

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@altabiznet I’ve been on levothyroxine (sp.?) for years. I was diagnosed with hypothyroidism in my mid-20’s but self-diagnosed Hashimoto’s a couple of years ago. The health care system in this area is terrible! Needless to say my endocrinologist is content with treating me as if I only have hypothyroidism. It is beyond frustrating!

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Profile picture for margaret69 @margaret69

@altabiznet I’ve been on levothyroxine (sp.?) for years. I was diagnosed with hypothyroidism in my mid-20’s but self-diagnosed Hashimoto’s a couple of years ago. The health care system in this area is terrible! Needless to say my endocrinologist is content with treating me as if I only have hypothyroidism. It is beyond frustrating!

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@margaret69

Sorry, to hear that you do not have proper health care. May need to be your own advocate. If you have multiple symptoms possibly caused by anemia or vitamin deficiency, you may want to see a good Primary Care PCP. They do multiple blood test panels to identify the root cause. If it is iron deficiency anemia - then go to Hematologist to get iron infusions. If it is Vit B12 or Vit D deficiencies and you are eating nutritious diet, then it is malabsorption that may need injectable vitamins. PCP can prescribe IM vitamins.
If you are having symptoms of inflammation, like joint pain, neuropathies, swelling, allergies, then Rheumatologist would be your next step.
My suggestion is to start with PCP practicing Integrative Medicine who will look at all of your symptoms and do multiple tests for you. Best of luck!

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