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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (470)

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Has anyone had their feet or toes get numb from taking HU?
My right two toes got numb last week and they did an ultrasound to see if any clots. None. But they didn't think it was the HU? Anyone experienced this?

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Replies to "Has anyone had their feet or toes get numb from taking HU? My right two toes..."

@lindakay55 PV can cause numbing and tingling in hands and feet/toes. Also you will feel burning and stinging in your bones sometimes, mostly shins and sometimes it’s forearms for me. So many weird things happens from PV. With all the extra cells I just joke and say Don’t mind me, I’m just EXTRA!