Hello. Wow, I think I can safely say anyone reading of your predicament, and my response, would agree that we feel badly for you. That's a tough row to hoe.

Unfortunately, this is a peer-to-peer forum site that is almost never attended to by true health professionals. We cannot give you the medical advice you seek....sorry. All you should expect here is anecdotal information, heartfelt sympathy, and maybe advice about from which experts to seek considered advice, Most will say what they have, what was done for them, what they continue to do and to take as a remedy and for maintenance, and that is about all we're permitted to do by forum policy.

Would you have a specific question? In time, sufferers of one or more of your medical conditions should see this and respond. Please be patient.