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DiscussionAnyone in this clinical trial for low-dose Tamoxifen (LoTam)?
Breast Cancer | Last Active: May 11 5:00pm | Replies (36)Comment receiving replies
Replies to "I started the discussion because my onco doc suggested that I would be a good candidate..."
@whitehairwisdom Always good to get another opinion when you’re not comfortable with something.
My experience when I moved my care to a cancer research center, the oncologist & radiologist were specialized in breast cancer nd much more open to discussion and they were more comfortable going with a treatment plan that was outside of “guideline directed therapy”. When I was at a smaller hospital, they only offered what the guidelines said.
@whitehairwisdom because the 5 mg is not available here in the US, many women take the 10 mg Tamixifen every other day. With or without telling their doctors, it seems. I see their comments online!
@whitehairwisdom I am also 68 and have been on Letrozole for 2 years and I was having bone pain, and terrible dry eye, and I went to the oncologist today and I just said 5 mg of Tam or nothing. She tried to talk me out of it but I insisted on it. I am with you after all these years of research on breast cancer this is all they can do for us? I was supposed to be on Letrozole for another 8 years! I would have no bones or eyes left!!
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@whitehairwisdom I'm 72, stage 1 & had to twist his arm, figuratively speaking, but my oncologist prescribed a half-dose (10 mg) of Tamoxifen for me which will hopefully also protect my bones. It's only been a couple of weeks but no real side effects. I'm hoping I tolerate the 10 mg, otherwise I'll drop down to 5! We have to advocate for ourselves, I agree! Best wishes to you!