Mouth Cancer: Dealing with pain, osteonecrosis and trismus.

Posted by ganna54 @ganna54, May 17, 2025

in 2023 I got mouth cancer, was operated on, then had 34 treatments of radiation. In Oct of 24 I had a tooth out because Dr. said it was in the way. Then got covid. Then in Dec of 04 had second tooth out. They are now treating me for osteonecrosis and trismus. I am in relentless pain 24/7. I take acetaminophen 3000/day. Have had 2 biopsies which show no cancer, but mouth has ulcers. I am still being seen by my 2 surgeons. One suggested Botox and a hyperbaric chamber. I should add I also have MS for25+ yrs. Are these procedures safe for me? Does Botox spread? Thank-you.

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

William Olsen, Volunteer Mentor | @hrhwilliam | Jan 17 9:03am

In reply to @captain22 "@hrhwilliam I am curious did you have surgery while doing cancer treatments? Was your cancer recurring?..." + (show)

@captain22 my initial cancer was twenty years prior, a tumor on a tonsil pillar, which required surgery followed by radiotherapy. It was the radiation which eventually killed the mandible. I had years of infections and teeth issues in that area until my bone was so dissolved that additional dental work was being refused.
The cancer never returned. The mandible is solid and healthy. And I have some beautiful gold prosthetic teeth which seem to fascinate kids.
Are you having issues or do you have concerns about or considering this surgery?
P. S. I notice you are new here to Connect. I would like to welcome you to our group and I hope you can find answers here.

Colleen Young, Connect Director | @colleenyoung | Jan 30 6:00pm

In reply to @captain22 "@hrhwilliam I am curious did you have surgery while doing cancer treatments? Was your cancer recurring?..." + (show)

@captain22, I add my welcome. Are you considering a mandiblecomy? How are you doing?

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