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Profile picture for marianne72 @marianne72

Thanks for the discussion. It helps me think of possible scripts I could use in the future. Biggest challenge I face now is family members in the house who live on pins and needles thinking I’ll have a seizure any minute. This, despite assurances and much improved stabilization after starting meds six weeks ago.

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Replies to "Thanks for the discussion. It helps me think of possible scripts I could use in the..."

@marianne72
biggest issue i had was different types of seizures. my first ones and i did not know what they were, are called ground seizures. learned that just yesterday. since then i have had numerous types. Focal ones are for me the hardest. usually takes me three days of resting in bed to get back to normal. Thank you for your posting. and the like.

@marianne72 last comment tonight. your healing and improving. its taken me more than a year to get this far but im thankful for the journey and if anyone of your family has a question ill gladly respond to an email or chat here in the group. the mind has a remarkable way of healing. mot just brainwaves but the body. just have to believe and fight for what you want. Thank you so much 💓

@marianne72

I have been really lucky, I guess, because my kids who are local have seen me with a seizure and treat them as “ this is just what mom does”. ( It makes you wonder what other things I do they think are odd. ) I once electrified my church group with a generalized seizure, but the retired RN recognized it and knew how to handle it.
The epilepsy foundation has a video on their website showing you what to do for someone with a seizure. If you know someone who says they are worried about this, tell them to look for that video.