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Question regarding lung surgery
MAC & Bronchiectasis | Last Active: Apr 9, 2021 | Replies (60)Comment receiving replies
Hello Jen, I am new to the posts. I just signed up yesterday.....My name is Linda Knox, posting as lindaaz.....Have you ever had your IgG count checked.????
Along the road to my diagnosis a blood test showed that I had almost no IgG count........something like 250 when the lowest is around 600......I have been on IgG infusions for 5 months..(immunoglobulin) ..It is now just getting into the normal range with an infusion monthly........It is suppose to help you fight infections.....
I haven't had any new infections while doing this.and I feel better......more energy for sure.....but no help with the coughing !!! Some people I have met while doing this give it rave reviews and are now stretching the time between infusions.......Just thought I'd mention it.....
I have just started the 3 drug therapy but starting with one each week to build up to taking all three 3 days a week....Pretty nervous.......
Hope this finds you doing well.....So happy to have found this site.....
Linda az
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Hi Jen, Here's a link to the MAC conference at Jewish Women in CO. 2016 https://www.nationaljewish.org/ntmvideos2016 There's information and a 30 minute video from Dr. John Mitchell, a surgeon. I'm meeting him next week. I was diagnosed w/ MAC spring of 2016. I'm still on several antibiotics. I have a cavity in my one lung and a nodule in the other. My infectious disease/lung Doc at Stanford Medical things surgery is a good option for me. He's concerned about reoccurrence, which I hear is quite common, & more so w/ those of us who have cavities in our lungs from the MAC bacteria. I'll know more once I talk w/ Dr. Mitchell. I also have had negative sputum sample every month & 12 so far in all. The surgery is elective and is individual decision. I'd like to hear from people who've had the surgery. All the best, Rona