Pancreatic Cancer Group: Introduce yourself and connect with others

I was diagnosed with pancreatic cancer sept. 2025. i have mets to mu lungs and liver. I have had 8 treatments of gemzar and Abraxane. My first scan was after 7 treatments was 1/5/26 and it showed reduction in all areas. That was exciting but it's still a long journey. I'm continuing current treatment and have no idea what's next for me.

@akhealth15
Diagnosed in December 2024. Had 12 chemo gem/abax treatments, finished in July 2025. No shrinkage of tumor which was abutting SMA and encircling SMV. I chose to have 5 Treatments of SBRT radiation in the hopes of being eligible for Nano-knife procedure if tumor shrank by at least 25%. I had follow up CT scan 2 months later and tumor had shrunk by almost 50% and I was back on track for the Whipple surgery. There was a rush to get it done because of possible scarring from radiation. I had the Whipple surgery December 4th. The surgeon was thrilled with the results, said it was very clean. I am healing well and will not require any post surgery chemo or radiation. Will follow up with CT scans and surgeon appointments every 3 months. I had my chemo in my area, all other treatments at CPMC in San Francisco. My cancer was acinar cell carcinoma, approximately 4 x 4 cm at diagnosis. I'm 78 yrs. young. Every one is different
I recommend getting as much info as possible and asking questions.

I had acute pancreatic and I had to give up or I would get cancer. I have the gene my dad dies from pancreatic cancer and so did my uncles. I was so scared that I am trying to learn and do all I can even knowing people that have it. Not knowledge about it trying to educate myself.

@gmapri, how did your appointment go? Did you get the results of the liver biopsy? Next steps?

@colleenyoung ultra sound was delayed because I had a pancreatitis flare & shot my BP way too high. I was able to get it done last weekn& is the most common Pancreatic Cancer. It's in the tail of the pancreas & liver. I start chemo on Friday. Hopefully this first combo of drugs will work to slow things down.

I am still trying to figure out how to navigate this system but I will post what is happening as it happens. I have an appointment at Mass General Brigham and Womens on 1/27 to meet with a surgeon to discuss the biopsy done at Wentworth Douglas hospital in Dover NH. At this point we will discuss what to be done in regards to treatment. The biopsy was not definitive but the cyst/tumor was large enough to be of concern. I have other health issues: type 2 diabetes, fatty liver, obesity and other marginal issues. I can’t seem to lose any weight although I guess that could change depending on the future. I am 73 yo and really wonder how much of a fight I should get involved with. My immediate family is gone, my friends are dropping like flies. I generally feel emotionally numb to the world and my situation and will most likely continue the process more out of curiosity than desire. I guess it’s my duty to continue.

Original pancreatic tumor 1.6 cm and not metastatic.
After chemo a 50% reduction and still not metastatic per PET scan.
Totally debilitated from chemo.
Not a whipple candidate or candidate for more chemo.
Is there any treatment or limited surgery availble to remove just the tumor.
Realize that would not be a cure but a life extending procedure.

@lila1980 , how did the appointment go? How is your husband doing? What is the next step for treatment?